HealingWell
Search Close Search
☰

New to site...Everyone seems so great!...And I am scared!

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/21/2012 1:02 AM (GMT 0)
I can say i have never been so scared in my life. I was diagnosed with chrons a week ago and am now on Prednisone waiting to go back to the GI on the 27th. I am fearing dying from this disease and been having nothing but panicky feelings every day. I am a mother of 5 and have a full time job that I do not want to have to quit. 38 yo /female

Post Edited (Malshay) : 1/20/2012 7:52:51 PM (GMT-7)

Posted 1/21/2012 4:47 AM (GMT 0)
Hi Malshay. Please don't panic. There aren't too many ways for Crohn's to do anything more than make you miserable. Prednisone can make some people very anxious, so perhaps it is the medicine that is making you feel so panicky. I'd suggest you call your DR and talk about that, and how fast you are supposed to taper off this medication.

Welcome to the forum, you will get a lot of support here. I got diagnosed at age 38 also; I had my first child at age 37 and that is when my symptoms began. It took a while for my DR to finally do a scope.
Posted 1/21/2012 5:21 AM (GMT 0)
Try not to worry, there are a lot of treatments to try and new ones being developed. Let us know how your appointment goes, and give those kids a hug :)
Posted 1/21/2012 5:24 PM (GMT 0)
There are so many more treatments available now than there were even 5-10 years ago. It's good to try to stay positive. Hope the appointment goes well.
Posted 1/21/2012 5:51 PM (GMT 0)
Thank you all so much for your support. I guess when I read all the horror stories of what CD can do to you it gets me so depressed and I need to stop doing that. Lol...
Posted 1/22/2012 2:22 AM (GMT 0)
Kazbern I see you were diagnosed around my age. Do they know if you had it for quite sometime? Have you had any surgeries due to CD? I am just so curious on this that I feel it is taking over my well being mentally. I had a colonoscopy 2 years ago and was told I had a fissure and the dr never mentioned that it could have been CD. Is that wierd?
Posted 1/22/2012 2:40 AM (GMT 0)
I'm not sure this forum is the best place for a newly-diagnosed Crohn's person, particularly at the moment...

Just remember, you are mostly seeing the worst-case scenarios here. The ones who have been through the mill, back again, and then through it another ten times just for fun. I don't think they really represent the typical Crohnie with mild/moderate disease kept under wraps with medication. People tend to come here when times get bad and then leave again when they improve. Myself, I only really began seeking out Crohn's websites when my disease got worse. For years it was mild and it never occurred to me to join a Crohn's forum to post about it.

Good luck :p
Posted 1/22/2012 4:03 AM (GMT 0)
Malshay, I have never had a surgery and when I was diagnosed it was a surprise to me (although now that I know I have IBD it turns out I have a 2nd cousin with Crohn's and my grandmother lived her whole life with awful bowel problems...heh). My pregnancy is what triggered the whole thing, but I did have lots of stomach complaints as a kid and young adult. I am sure that I had mild IBD for years before the bleeding started after my daughter's birth.

Unlike many here, and as NCOT has mentioned, I am not particularly ill and my DR calls my disease mild. I worry about strictures - I had an esophageal stricture a couple of years after my diagnosis, before I had a really good handle on managing my illness with meds (and diet). I don't have fistulizing disease, and my DR believes that I will not develop fistulas - some people with Crohn's do, and some do not. So my medications have stuck to the safer variety, the 5-ASAs, and they have worked well. I did have to tweak them around for a few years to find the happy balance. It took some serious work on my part to figure it all out. I found this forum a couple of years ago and the people here helped tremendously. At that time I was feeling pretty ill, having been through a major life trauma and going back into a pretty significant flare (for me). Since then I've changed meds, added a laxative, eliminated gluten, added vitamin D....resumed an exercise program. I'm feeling pretty good all around. Compared to two years ago when I couldn't eat without nausea, I had lost weight, my hemoglobin was down to 9 and I had joint pain in my hands, elbows, knees and lower back.
Posted 1/22/2012 5:40 AM (GMT 0)
Nicecupoftea,
I think it is ok to join even if I am newly diagnosed. I was diagnosed with the same Illness and it helps me to know I am not alone. I am sorry if I sound like I shouldn't be here , Yes I am new to all this but you have to start somewhere I can't just :think" it away or make it disappear. I am just looking for support too.

Post Edited (Malshay) : 1/21/2012 10:44:35 PM (GMT-7)

Posted 1/22/2012 6:27 AM (GMT 0)
Malshay,
You should be here. This is where you will get a lot of support and information as you experience the ups and downs of Crohn's disease. Good luck at your appointment and you don't need to panic. It's a pain in the bum but you sound like you are taking care of yourself and there are a lot of people here to cheer you on.

All the best
Posted 1/22/2012 6:03 PM (GMT 0)
I was dx in 04 and very sick..I had only heard of CD in 1994 of supposedly a professors wife dying from it..I panicked..I wondered about my being able to work, ending up on ssd, quality of life, and being able to care for my family..The drug maze after was just as confusing along with feeling horrible..Pred can mess with your emotional state as well till you get use to it..I was an emotional mess with severe insomnia..I am on the drug long term now and the weight gain or bad side effects when trying to taper is all I have now..CD is very personal and can affect people differently..Diet and medication work differently for people as well..How were you dx'd?? I had to go through many rounds of tests over and over..I swore I had enough CTs to give me cancer from radiation! I had alot of the extra manifestations and upper GI problems but no fistulas here..I have been able to work fairly well over the last several years but 04-08 was not easy..My disease has never gone away but I learned how to manage..It seemed all the drugs made me worse not better?? Hope you get more answers on treatment from the GI..This board helped me tremendously.
Posted 1/23/2012 1:11 AM (GMT 0)
im glad I joined i was scared to death, but the people here gave me wonderful advice and I am not scared any more, I am new to I am 47 I have been sick since 1993 but they just diagnosed me. I work also I eat light at work and I always carry spare clothes. And I use immodium if i need to some times it works sometime it doesnt. good luck.
✚ New Topic ✚ Reply