Scope results: Not in remission :(

I know it's kind of late & all but I had my colonoscopy today....I'm not in remission like I thought :( In fact, a few places look worse. I had inflammation and ulcers in my stomach, duodenum, Terminal Ileum, Splenic Flexure, hepatic flexure, cecum & rectum. The GI told my dad that my actual stomach looked like a mess & he saw undigested pills(from saturday despite my clean out!!) & what looked like gallstones hanging around in my stomach(I already got my Gallbladder out so that's not good if it is). Now we wait for the biopsies. I'm going to keep on keeping on with my Humira, hopefully. I don't want to go back on prednisone. I'm tired of it & I'm tired with these treatments failing. Well, thanks for listening to my vent :) I guess God's not done using me yet & I told him last night & this morning that I want to be in remission, but ultimately, I want Him to do his will because his plans are better than mine.

 

   I guess this explains my weight loss because my TI looks pretty nasty.  Looks like I'm going to need to work out to get some muscle. I guess the most dissapointing thing is another colonoscopy this year is in my future. This has been my 6th one since last April 

 

I played a trick on my GI by the way! My mom wrote on my butt "Sh** Happens" & then she drew an arrow to my butt that said "Scope here"   My GI told my dad he loved the little "messages I sent him!

Well, it took a while for me to get diagnosed(like you :) Everyone of my colonoscopies were done by a different GI when I was struggling with a diagnosis(except the last 3 because I love this GI & he's the one who diagnosed me) & EVERY colonoscopy looked different! Most of them looked normal & a few biopsies showed I had an infection but a doctor came in during a hospital stay when I was sick & she said "I'm not supposed to do this but I have a family friend who is the best of the best & he will find out what is wrong with you." So my mom called the GI's number & that day I got discharged we drove to Birmingham & met my now current GI. He looked through all my records & said the steroid shots were the thing that threw off my bloodwork & colonoscopy pictures for most of my scopes. He did a Small Bowel Follow Through & it showed I had a mass so he scoped me a few weeks later to see what the mass was & TA-DA! After years of looking for a diagnosis, my Crohn's showed up! It turned out I had a deformed Cecum from my Crohn's and it can hold large ammounts of poop & bile in a little "pocket". Which is part of the reason I have constipation issues. So that's why I've had so many scopes :) So don't give up & keep searching for a doctor who believes you!

They did this scope to see how I was doing 6 months later after diagnosis & my GI was looking for a bacterial infection & not thinking I was still flaring but I guess I still am.

You should SO do it! I told my GI to make sure he turned my butt to the right so he could see a surprise (:

Love the dr. note! Luckily it sounds like your dr. is on top of things and is giving you great care. That is something to be thankful for! Hoping you quickly get through this troubling time.

Of all places, you'd think the Crohn's camp wouldn't require remission. That's amazing!!! So sorry....I hope you get into remission soon

@mdf34: Well, let's just say lately I've been "overdoing it" & trying to eat what my friends I ate(salad, apples, thick hamburgers) and let's just say my tummy reminded me that yes, I am flaring. I was laying in the bed the other night about to rip my stomach apart & my joints were hot & felt on fire. I will admitt though, Humira does give me a few good days & that's better than nothing. It just frustrates me more than anything when I feel good(or convince myself I'm feeling good) & then out of nowhere, Crohn's slaps me in the face. That's usually how I get in remission, like you, I slide into it. It is a gradual process.

@Gumby: That's exactly what my GI said!