Hi Everyone - This is my first time posting, but I have been a long-time lurker. I was diagnosed with Crohn's Disease in 2005, was on 6MP for about
4 years, which helped keep me from any major complications, but never really gave me remission. I suffered from an obstruction and pevlic absess in 2008, but was able to treat it with prednisone and antibiotics, and avoided surgery (Thank goodness!). I have been on Humira since 2009, which gave me almost 3 years of total remission.
Now to the present . . . I had a baby 13 months ago and noticed a flare smoldering shortly after giving birth. The last year I have felt off with cramping, painful BMs, and frequent gas and bloating. The last month or so I have noticed a small lump just to the right side of my belly button, and this past week I have been suffering from dizziness, chills, and a low-grade fever that comes and goes throughout the day. My GI was able to squeeze me in yesterday to check it out, he mentioned that it could possibly be an absess or fistula forming, but did not think that was the case. He was not too concerned with the dizziness and chills because I am not having "shaking chills" (although now that I am aware of it, I was shaking a little last night?). He ordered bloodwork and an MRI Enterography (pending insurance approval), but until then I feel like I was just sent home to suffer. My hope is that these symptoms are due to a bug, but my gut is telling me that's not the case. Do you think he should have given me antibiotics to hold me over until we have a better picture of what's going on? I am desperate to feel some relief, I feel like an inadequate Mom (I had to call my mother today to bring my son to daycare because I didn't feel comfortable driving him with the dizziness), and a bad wife and employee (I've had to cancel all my appointments two days in a row for work this week because I feel so crappy).
Hopefully some of you will be able to give me some insight. My GI is very good and has been a Godsend in the past when I have been very sick, but lately I feel like everything is a waiting game with him and in the mean time I'm just missing out on life while I feel sick. Once we get past this current issue, I hope to switch to Remicaid, since it doesn't feel like the Humira is effective any longer.
Thank you so much for listening!