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Has anyone had a terminal illium resection and gone into complete remission?

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Crohn's Disease
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Posted 6/27/2012 12:55 PM (GMT 0)
My cousin my have to have a resection of the TI and I was wondewring if anyone here has ever had a resection and actually went into complete remission and never had crohns return for years or never? I suspect that if someone goes into complete remission never to have a flare again, they probably won't be on this forum, but I guess there is no harm in asking.  I  know of only one person, my barber. He had crohns since 1971 and was on predisone for years, finally having a resection in 1988. Since then, he has never had a single flare or sympton and eats anything he wants.  He take pentassa 500mg 4xday.  I wonder if this is a rare occurance is normal for CD? 
Posted 6/27/2012 3:16 PM (GMT 0)
I had a small bowel resection in 2000. I was in remission for about 10 years and did not take any meds for those 10 years. I have recurring disease now at the surgical site, but still minimal. I take cimzia and have no "real" issues.

It happens.
Posted 6/27/2012 3:36 PM (GMT 0)
Yes. Although it didn't happen right away. The surgery was in Aug. '82 and remission didn't happen until roughly '84. But, it did last nearly 20 years if that gives you any hope --- I do know now that this isn't the norm. I've been fighting active disease again for the last 10 years.
Posted 6/27/2012 4:22 PM (GMT 0)
I had a good 10 years before my first flare. Have had 2 small ones in the last 3 years but overall I am pretty stable. Watching the foods I eat and the amount of stress is my life is seriously important tho, cause those 2 can trigger a hellfire storm in my belly.
Posted 6/27/2012 4:33 PM (GMT 0)
Had a resection of TI in 1989 and very little trouble until 2008-9. It does happen and it seems like 20 years with greatly diminished symptoms is about the average response. Hope this helps.
Posted 6/27/2012 8:42 PM (GMT 0)
Had a resection in 1999, and barium tests revealed additional narrowing of a foot of intestine in 2004. My new GI doctor put me on 6MP, and the narrowing actually disappeared (indicating that we'd caught it early enough to be inflammation, rather than scar tissue). Since then, I've technically been in remission. I do continue to have crummy symptoms, but it's clear that those are either "short gut syndrome" and/or "bile salts diarrhea," mechanical problems, rather than flare-related. I watch my diet very carefully, and I hope that I can stay in remission for a long time. You never know, though. But I'm keeping my fingers crossed.
Posted 6/27/2012 8:54 PM (GMT 0)
I had 18" of TI resected when I ruptured in 1990.  In the last 22 years, I have been mostly just on Pentasa when I remember to take it (first year was azulfidine).  I have only had to go to prednisone 4 times and the longest run of that was four months.  I did have a fistula and was a poor reactor to flagyl so that took about a year to heal on a seton alone.  I had gallbladder issues and it was removed.  I can not go a day without cholestyramine or even jsut a saltine sends me sprinting to the potty....but....My GI is thrilled with me and my last scope shows no major changes other than the usual scarring at the resect site.  I really am one of the lucky ones!

ps...I definitely CAN NOT eat anything I want.  I limit my diet to foods that do not irritate me after the inital years of learning.


Posted 6/28/2012 12:26 PM (GMT 0)
Thank you for all your responses.  From all of you that went many years after a resection before CD returned, did you all return to having normal formed BMs or were they always loose and watery.  The surgeon told my cousin that she only needs to have about 7 inches of the TI removed which will include the valve. He said she will have no problem with BMs and they should be normal afterwards.
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