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Posted 11/1/2012 2:02 PM (GMT 0)
I feel miserable sitting at the office for so many hours, trapped gas is a huge problem... I haven't had d for at least 2 weeks, normal bms once or twice in the morning (which I'm glad for of course), I have gas when I wake up, and then.... misery begins until I get home, lay in bed and it comes out.
I have noticed though that this happens when I'm on pred. I'm now on 25 mg per day. (that's why I have normal bms, it's not that I'm lucky or something!).

I try to get up and walk around the office, but it's not easy, I have so much work, plus you understand I cannot let gas in front of everybody...

Suggestions?

Thanks,
Christina from rainy Athens
Posted 11/1/2012 2:28 PM (GMT 0)
At night do some twisting stretches to massage your gut and push out the gas.

And get off the prednisone and onto something more sustainable. Have you tried budesonide?
Posted 11/1/2012 2:37 PM (GMT 0)
Yes I'm on both pred and budesonide right now (called Budenofalk here in Greece don't know the trade name in other countries). But when I'm on budesonide only, it doesn't help much...
Posted 11/1/2012 3:32 PM (GMT 0)
Christina, a few months ago you were considering a resection to get rid of the long stricture you have. I am very concerned that you are making bad decisions for your long term health by using prednisone to manage your bowel health (and you are still not symptom free, this gas issue is probably directly related to your stricture) and you are avoiding other medical treatments that can offer you better results with much less risk of major side effects.

Your DR is offering you biologics now? In June it was azathioprine? You seem afraid of both of these meds. I know that the devil you know seems better than the one you don't, but I will tell you flat out that it is not a RISK that pred will cause you long term harm, but a CERTAINTY. Azathioprine and biologic meds certainly come with risk, but they are small compared to the improvements you will get by taking them. Improvements in your health, improvements in your quality of life....good stuff.
Posted 11/2/2012 10:58 AM (GMT 0)
The only suggestion I have is to maybe add a probiotic to the mix. I find that when I have normal BMs and things are in my gut longer (if that makes sense) that I get alot more gas.

Good to hear from you too! I know things are unsettled in Greece right now. If you don't mind me asking, does it make it harder for you to get the care/meds you need?
Posted 11/6/2012 8:35 AM (GMT 0)
Hi lamb61!!! Yes things are rough in Greece now, but fortunately I don't have any problems whatsoever in getting my meds or seeing my doctors. The only problem is that the government has now decided to increase the prices of meds for chronic illnesses as well. Until now, I was paying 10% on the price of each medicine and the rest was paid by my insurance. Now they increased it to 25%. As you know some of these meds are expensive, and with the cuts in our salaries, it is a real challenge.

Thanks for caring! I hope you are fine too. Regarding gas, my problem is that I sit so many hours in the office, and nothing really moves... by the time I leave the office I look like 9 months pregnant!

Hugs from shiny Athens
Posted 11/6/2012 9:23 PM (GMT 0)
Azathioprine is a cheap med, I think - the biologics, unfortunately, aren't :-/ I guess if you can't afford them, you just can't: I do think that is so wrong, though.

Anyway, I agree, a stricture will tend to make things like gas and bloating worse. And that sitting for hours on end makes gas worse, too. That sucks, and I feel you on that. You certainly can find ways of releasing gas during the daytime, though - go to the toilets or find an empty corridor or room...
Posted 11/7/2012 2:35 PM (GMT 0)
Walk as much as you can, even a few steps from one end of the office to another. In the evening and on weekends at home try laying on the bed or floor on your knees and chest w/your butt in the air, lay that way a minute or more then roll over to one side w/that leg straight out and the top leg curled into the fetal position, then roll over to the other side, that leg stretched out and the top leg in the fetal position, then roll back onto your knees and chest, butt in the air. That usually really gets the air moving thru the gut as well as the liquids and chyme. And, of course, there's Beano. *wicked grin*
Posted 11/20/2012 9:00 AM (GMT 0)
CrohnieToo, what exactly is Beano???
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