Remicade side effects!?

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Snivler

Regular Member

Joined : Nov 2010

Posts : 81

Posted 12/2/2012 10:27 PM (GMT 0)

Remicade users! What are your side-effects?

Post Edited (Snivler) : 12/2/2012 5:37:58 PM (GMT-7)

Snivler

Regular Member

Joined : Nov 2010

Posts : 81

Posted 12/2/2012 10:30 PM (GMT 0)

I am in my second year of Remicade treatments. My side effects include very sore joints, ligaments and tendons. Does anyone else have these problems? I take 3 to 4 yoga classes per week in order to combat the stiffness and pain. It seems to hold me at a plateau; I don't feel great, but I'm not getting worse.
I would be interested to know what your experiences are with Remicade.

Sierra

Question Everything

Regular Member

Joined : Aug 2012

Posts : 444

Posted 12/3/2012 3:13 PM (GMT 0)

Snivler,
Remicade seems to affect everyone a bit different. I was getting Remicade from July 2011 to August 2012. The sore joints, the memory loss, Doctor called it a fog, I called it scary. When it wears off you sure know it. The loss of memory, well quiet frankly was debilitating. I worked with technical stuff and to draw total blanks was awful. When it worked and I had no reactions it was fantastic. Am currently on loading does of Cimzia. I rather be getting Tetanus shots.

scifigal2k

Veteran Member

Joined : May 2012

Posts : 3704

Posted 12/4/2012 3:53 AM (GMT 0)

I sometimes get a bit foggy, but I've been pretty sick this year. I get migraines for a few days after each infusion. But overall I'd take it over flaring any day.

Snivler

Regular Member

Joined : Nov 2010

Posts : 81

Posted 12/4/2012 7:18 AM (GMT 0)

Thanks for the notes of side effects. I am trying to separate them from the effects of Crohn's flares and learn how to manage them better. As with everything I have learned from this disease information is key. There are very few Crohn's patients where I live so I have to keep myself informed and this forum has been a true lifesaver.

Sierra

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