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I like you guys to confess to---I still have not called my GI

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Crohn's Disease
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Posted 1/25/2013 1:00 PM (GMT 0)
I was going to call him the beginning of the week because things just aren't great.  OK things stink for me---still feel like I am being intermittently stabbed with a letter opener.  Well I keep "forgetting" on purpose.  I just don't want to have the conversation of him wanting big meds and my begging to go another round of pred.  I dont know why I am worried...he is a great understanding doc who has listened when I said what I need in the past.  I am supposed to see my GP on Wednesday---need to get my B12 as I have been missing it.  I guess I'll talk with him first.  I jsut know I shouldn't wait not eating much and having zero energy....I just am not dealing with this.

Hubby and I are meeting with a couple tomorrow that are great friends...problem is they know CD as they have it and they know me.  I just know they are going to push me to be better at calling.  Can I just be bad "in front of" you guys?

Posted 1/25/2013 1:28 PM (GMT 0)
The dread is so often worse than the actual doing. Knowing that doesn't lessen the dread at the time unfortunately, but, chances are, after you've seen your GI you'll wonder why you didn't do it sooner or feel a weight lift off your mind.

Be wary of Pred. If it's reached the point where you need several courses a year, that's too many and something will need to change. But if you haven't had a course for a long time, hopefully that might be enough to knock you back into remission without needing to go onto the 'big gun' meds.

Good luck for when you do eventually see your GI :p Needless to say, if things get any worse in the meantime, really do see a doctor ASAP.
Posted 1/25/2013 2:08 PM (GMT 0)
Hi Habs,
I completely relate to what you are going through! I ALWAYS drag my feet and stall before finally calling my GI, and he is the nicest guy in the world. It is just so hard to face it that you are really in a flare, and you want it to magically just go away so you don't have to deal with it. I soo get it!!! But you already know that you need to call the doc, and I know you will be glad once you get it over with! Sorry you are going through this....vent away..we are here for you!
Posted 1/25/2013 4:35 PM (GMT 0)
Prednisone is nothing but a bandaid - and not a very good one at that. Sure, it usually brings you temporary relief - but Crohn's disease is NOT a temporary disease.

You are not being realistic about this DD. If you've honestly tried all the lesser meds and they haven't done the trick for you it becomes a choice of trying "the big guns" or suffering more and more and eventually donating more and more pieces of your intestines (digestive tract) to the surgeon's knife and pathologist's plate, sort of like being carved up like a turkey over the course of several meals.

I know it is scarey as ole billy heck but you really do need to set yourself down and face reality and talk to your gastro to decide on the best course of action for you. Good luck, God bless and ((((hugs)))
Posted 1/26/2013 7:06 AM (GMT 0)
Hi I agree with CrohnieToo. I would get in asap to your GI doctor.
What we have we should always take care of our health.
Posted 1/26/2013 7:52 AM (GMT 0)
Hi Habs,

I definitely understand where you're coming from. For me, even while at the GIs office, when I do manage to make my way there, there are times I'm still hesitant to say how I am really doing. I have my generic, canned responses, "yeah, I'm doing OK."
We all know when it's time to come clean and spill the beans. That time is now there for you, so please make your appointment and get yourself on the way to feeling better.

Good luck and hope you are feeling better very soon.
Posted 1/26/2013 6:21 PM (GMT 0)
I would take humira/remicade everyday over pred.
Posted 1/27/2013 7:38 PM (GMT 0)
Habs, you are not alone. I think the same every time I get a flare up. I start curing myself by adding and shuffling meds for a week or more if I can stand it. The, when I get at my wits end and this usually happens, I rush to my GI. And there he has the solution for my problem. It's his job. I usually regret not seeing him from the beginning instead of suffering but I never call him once I become sick. Why? I don't know.
Please call your GI if you are not feeling well. Hopefully, he can find you better meds.
Hope you feel better soon :)
HUGS
Posted 1/28/2013 12:06 PM (GMT 0)
Thanks for listening guys.  For those of you thinking I should avoid pred...here's why it is my next try.  I have had CD fro 22 years and only have to be on prednisone every 11 years.  I am a start with the minimum and then move up in care kind of person.  Unfortunately, the communication of the hospital docs and my GI was lousy when I hit the hospital in October.  When I was discharged 2 days later, there was debate over pred or not and how much and no one really decided until I called my GI (originally sent home with the punch pack for a week worth when they gave me 40mg in the hospital).  The pred I ended up on was still the shortest smallest course ever (6 weeks starting at 40mg) and many of you confirmed that when I mentioned feeling it was a quick run.  I want to give it one more try and maybe a little longer to see if it will do what it had done int he past for me.  I felt good at 20mg...considering that was 3 weeks post tossing cookies in the ER that says something to me.  I have great bones per my dexa scan and the side effects of a round of prednisone is less concerning than my other option past it at this point.

I had a rough weekend--husband knows I am in sad shape when I am "even paler than my normal shade of white".  My good friends we met with on Saturday with CD nudged me to call more too...they know me and that I will get care if need, but they are also like me that they stay to the minimal amount of meds needed. Hubby is insistent I call today or no later than Wednesday when I see my GP.  I hurt enough and am hungry enough to agree.  Woke up at 1am this morning and could not get back to sleep with work stress so that is not helping.  Just really wanted it to resolve enough to get through a month.  Going to call and thanks for those of you that understand.  I have had mini flares in these 22 years---mostly could reslove with a liquid diet for a few days, but only a major flare every 11 years---was so lucky I have turned into a whiner I guess

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