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Calling all folks that have had C-Diff...

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Crohn's Disease
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Posted 3/27/2013 6:44 PM (GMT 0)
Hello to everyone, as always.

Okay... well, I thought that I've been doing fairly well. I mean, I've been c-diff free since January. But, I have a couple of questions.

1. Do y'all (that have experienced this phenomenon known as 'remission') still go to the bathroom a lot? If I average it out... I probably go between 3-5 times a day. There are days (few and far) where I don't go, but maybe once and all that I 'see' is mucus the rest of the times. This leads me to my next question.... mucus. It's going to sound gross (but, I'm sure we've all be de-sensitized to 'normal' gross things); however, does anyone experience fishy-smelling mucus? I've been getting it a lot since the fall. It's not bloody lately, which is a good thing. But, I don't know if I should be worried about the heinous odor pointing to c-diff or some other sort of infection?

Thanks,

Jade

Post Edited (jk5493) : 3/30/2013 7:27:05 PM (GMT-6)

Posted 3/27/2013 7:56 PM (GMT 0)
Jade:

Watch out for the odor it usually in my son's case is a warning that he is having a C-Diff relapse. Have you ever had a relapse or had you just the one round?

Good Luck.
Posted 3/27/2013 8:02 PM (GMT 0)
The only time I notice a fish smell is after eating fish or taking fish oil supplements, if you are not eating fish then yes I would suspect some kind of infection. I have never had C-diff so I wouldn't know about any of the symptoms, but for me the mucus goes along with eating foods I am intolerant to, mucus is your body's way of trying to protect itself from something it doesn't like. The same way your nose will get stuffy and congested with seasonal allergies your gut will get stuffy and congested with food allergies.
Posted 3/28/2013 1:04 PM (GMT 0)
Dingleeire - thanks for the response. We "talked" about c-diff in your post about your son. I hope the latest round of vanco has been helping. To answer your question, I have had a relapse; however, at this point, it would be considered a new infection if it were c-diff again because of the time that has elapsed. Either way.... it would be disheartening as I spent about 6 months SUPER sick with c-diff; 2 of which they had no idea what was wrong with me, so it got pretty bad before they started treating it.

I'm thinking that maybe I'm having a small flare-up or something.
skofbengsk - I don't take fish oil supplements, and don't really eat much meat at all (meat in a college campus cafeteria is sometimes questionnable)... But, thank you for the thought! After the c-diff, we have found that I can no longer drink milk or enjoy ice cream without ill effects; however, I've not had any lately and don't usually have issues with my diet. I'm hoping it's just a small flare-up, or a minor stomach bug that is definitely going around campus. I'd rather either of those over c-diff... ever.

Thanks for the thoughts.
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