Chills, Fever...how do you cope?

I have had crohn's for over 5 yrs now and have been on Humira for almost 4 yrs.  The last 6 months I have been getting the chills and fevers more and more.  I have been to the er once and was told my wbc was elevated.  Recently I had an episode and I went to an urgent care to get my wbc checked and it was normal.  Does anybody else have this problem and how do you deal with it? 

I visited him after my er visit in Feb. but he didn't seem too concerned about it. I think I will call to talk to him more about it though. I am currently second guessing myself when I should take my humira because of this.

I've been diagnosed since 2002 when I was 20 years old.  At first my only symptoms was no appetite and diareah 20 + times a day.  I lost 25lbs in a month.  After diagnosis I was started on pentasa and steroids.  I seemed to be doing ok on those meds alone.  In 2003 I became pregnant with my son.  I was in remission the entire pregnancy.  After I gave birth the fun began.  4 months after giving birth I had to have my gallbladder removed.  Then I started to run these fevers.  For weeks.  I would be put on two different antibiotics by my gi.  Usually cipro and flagly.  Once I was done taking them the fevers and chills would return for weeks.  At the time my medicine regimen was humira.  While taking the humira  I felt like complete crap.  It did not work for me at all.  I was in and out of the hospital running high fevers.  At least once a month I was admitted into the hospital with fever for no apparent reason.  My doc explained to me that it was from the constant inflammation going on in the small bowel.  I was so sick.  I lost so much weight, I had constant diareah, I looked like a sick skeleton,  I was miserable.  Finally in 2008 I had my first small bowel resection.  I was good for 7 months then the fevers returned.  Worse fevers than before.  104 sometimes 105 fever.  In and out of the hospital constantly.  Sometimes the fever was so high I would get delirious.  I would have humming in my ears.  If my fever was even 101 or lower I would get the most horrible shivers.  I would shiver so hard my body would ache.  One time I was admitted into the hospital for fevers and dehydration and I had 105 fever that would come down.  The nurses had to wrap me in wet towels to get the fever down.  It was horrible.  I had my second resection in May of 2012.  Since then (knock on wood)  I have no run fever.  I'm also 28 weeks pregnant with twins and I feel great.  Kinda worrying about after they're born though.  Hopefully it won't repeat.  Ask you GI about antibiotics.  Maybe they can help.  Good luck :)

in the past 5 months this has happened to me twice. I didn't realize it was related to crohns. It was after I went to bed and even with an electric blanket on the bed I remember being curled in a tight ball shivering like I was having a seizure and my teeth chattering. I was initially diagnosed in 2003 but after the resectioning surgery and about a year of remicade I've been in almost full remission for about 8 years. I think i'm on the brink of a flare up though. I'm starting to get some of the initial symptoms that I had before.

My husband also runs fevers and has chills when crohns is flaring. In addition he also gets night sweats. I don't think this is because the humira is causing this. I suspect that perhaps humira isn't working as well and crohns is flaring up again.

I suggest seeing your GI right away, getting some blood work done, and maybe upping the humira dose or switching to maybe cimzia, or adding imuran to your regimen.

I hope you feel better soon

PV