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Joint, Knees and Back Pain ??

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Crohn's Disease
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Posted 10/4/2013 5:22 AM (GMT 0)
I have been having alot of joint pain in my knees & my back too. I have had cohns for 4 1/2 years & i havent had any pain like this until just a few months ago. What can I do & what can I take for the joint pains?

[* I just gave a title to the Subject line of this thread - C2]

Post Edited By Moderator (CrohnieToo) : 10/4/2013 8:16:21 AM (GMT-6)

Posted 10/4/2013 12:21 PM (GMT 0)
welcome to the forum Dana. Unfortunately, you can't really take ibuprofen, which would surely help your joints but most likely hurt your gut.

about 25% of people with inflammatory bowel disease develop joint pain along with their gut problems. Most GIs and rheumatologists think that the joint pains occur because of untreated inflammation in the gut. Is your Crohn's under control? What is your current treatment plan?

It is possible that you have developed arthritis separate from your Crohn's. People with one autoimmune disease are more likely to develop another. I'd recommend that you see a rheumatologist to get to the bottom of this problem.

I now take sulfasalazine as part of my treatment for IBD. It is an old arthritis med that is now used to treat the IBD and joint pain that some of us get. It has worked well for me. I also found that adopting a gluten free diet helped relieve some of the joint pain (and other gut symptoms, too).
Posted 10/4/2013 2:48 PM (GMT 0)
I been taking ibuprofen when ever i have a headache & my gi doctor said that im good with taking em. I do watch what i eat.. I take the one meds u posted & i only take em when i have a flare up cause i have had it under control for a year or two & now im having problems in my knees & legs whenever i get up off a chair or going upn& down stairs..
Posted 10/4/2013 3:22 PM (GMT 0)
Your GI is playing with fire if he says it's ok to take ibuprofen when you want to. You need to take your meds all the time to PREVENT flare ups.
Posted 10/4/2013 3:54 PM (GMT 0)
I dont iburpofen all the time i only take it when i have a headache or during my cycle to calm my cramps. See every doctor is different just like their clients. The only thing i asked on here if the leg pain n etc was apart of crohns or etc. i only get my flare ups during my cycle then they go away for awhile. So thats why i dont take my meds like i did 4 years ago when i found out i had crohn's
Posted 10/4/2013 4:13 PM (GMT 0)
There is solid data showing that ibuprofen and similar meds (motrin, advil, etc.) increase the risk of a flare up of inflammatory bowel disease. Your DR is just wrong. You are welcome to continue using this medication and experiencing flare ups (interesting how your use of ibuprofen during your menstrual cycle and your flare ups during your menstrual cycle coincide). Of course, many women get diarrhea during their menses, and many women with IBD get flare ups during their menses even when they DON'T use ibuprofen.

Sorry you are not feeling well, but you are not choosing the most effective path to getting well.
Posted 10/4/2013 9:50 PM (GMT 0)
My GI said Celebrex is the least gut damaging of the anti inflammatories and if I had to take one, that was it. It works great on my knee pain. I try to limit only to when the pain is bad
Posted 10/5/2013 1:16 PM (GMT 0)
So joint and knee pain are related to Crohn's? I mean, its not just cuz im 'weak or dont have enuf nutritious food" often? (thtz what everybody says when I say my knee aches -_-)
Posted 10/5/2013 2:19 PM (GMT 0)
Yes, it is likely that your joint pain is a part of your Crohn's.
Posted 10/5/2013 2:20 PM (GMT 0)
Joint pain can definitely be from Crohns. It could also be arthritis which many with Crohns also have. You should see a rheumatologist to find out. I think my knee pain is also from bone loss after long prednisone usage.
Posted 10/5/2013 3:16 PM (GMT 0)
My son only has the joint pain during a flare. Try Excedrin for headaches it works very well and won't do any damage or irritation to your GI tract.
Posted 10/5/2013 3:42 PM (GMT 0)
I cant take excedrin causr it makes me sick & etc right away.
Posted 10/5/2013 6:11 PM (GMT 0)
Excedrin includes aspirin, which is an NSAID and thus not recommended for people with IBD. And Bandit01, children should NOT take any aspirin product!
Posted 10/5/2013 9:01 PM (GMT 0)
My GI said the only thing I can take is tylenol. Anything else could cause severe stomach pains.
Posted 10/7/2013 3:16 AM (GMT 0)
I can only take Tylenol. I was taking things like Ibuprofen for headaches right before I was diagnosed and I almost bled to death. So I agree that you're playing with fire by taking them. Anything that is an NSAID is off limits.

I get terrible joint pains with my Crohn's. Right now I'm having a hard time walking because of ankle joint pain. For me treating the Crohn's is the only thing that really helps it.
Posted 10/8/2013 12:42 AM (GMT 0)
I made the mistake of taking ibuprofen every day over an extended period of time in 2011-2012 to prevent exercise-induced headaches (I also had a GI--and I should have known better, as I didn't trust him--who told me I could take ibuprofen with no problem). I am still flaring now 16 months later in an aggressive treatment plan. Did the ibuprofen *cause* the flare? It's probably not the sole cause. But I did have inflammation and ulceration in my stomach last August, which I will attribute to my high ibuprofen use.

I understand why people choose to use NSAIDs. I have daily headaches--and I mean I have head pain every single day. Tylenol doesn't really touch the pain. And I had a rheumatologist recently prescribe me Celebrex for joint-related pain. But I decided to not take it. It's too much of a risk for people with Crohn's. We have enough things we can't control; this is one we can.
Posted 10/8/2013 1:25 AM (GMT 0)
I have tried a lot of stuff nothing has helped me long term. It seems my body makes everything ineffective within 3 months
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