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So scared to eat....

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Crohn's Disease
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Posted 12/9/2013 12:08 AM (GMT 0)
I've gotten myself in a totally mind frame...I am so scared to eat anything...especially going back to work tomorrow morning. Starting scd intro diet Tuesday when I have some money...last couple days sticking to a few things on the low residue diet the doc gave me and now have aversion to everything in the house on that list. Friday night I hurt so bad I told DH I was scared I'd either be a drug addict or sucidal cuz I couldnt do it. Saturday was good compritively, drank ginger tea all day, had an egg for breakfast and a few potato slices fro lunch, broth fro dinner...had my first big fight with the DH but managed to make up and fall aslepp without pain med...Think I went from 2pm-2am without having to "go". But then at 2 am it was so bad, then 6 am...then I felt really woozy and wierd and slept till 11. Had a goo day till like 3, broth only, hen the pain struck and was back in the bathroom.

I am so scared to eat right now uggh.

I'll think maybe its improving, breahe through the pain and find there was no blood or mucus, but then the next time there is just bloody tissue again. There is less gas and mucous....but I'd rather have that than the pain.

Jus venting I guess...feel like I gotta choose fatigue from no eating or potentially moving into a gas station on the way to work in miserable pain....
Posted 12/9/2013 12:13 AM (GMT 0)
I'm so sorry you are suffering right now. Hopefully, your doc will help you to get on good medications to get this all into remission. It's very hard to eat when you are feeling so terrible, but try to do the best you can or you will be completely depleted of nutrition and exhausted. When do you see the doctor next? What medications are you taking right now?
Posted 12/9/2013 12:19 AM (GMT 0)
I meet the GI on Tuesday morning. After the colonoscopy Wednesday the surgeon called him to consult and they started me on 2 Lialdia a day. The ER docs had me randomly on Cipro and flagyl Monday, but I felt to miserable on them so I quit them friday till I talk to GI.

I know no one can ell me what to do...we are all suffering and need different roads to feel...I just feel stuck in limbo still or something, not sure what to do. looking forward to tuesday and hoping he is a good doc.
Posted 12/9/2013 12:28 AM (GMT 0)
My guess is that your GI might start you on a Prednisone taper to help calm down your symptoms. I take Pentasa, which is made up of mesalamine, just like Lialda, but it releases in my small intestine where my Crohn's disease is located. Lialda may help you maintain a remission, but it is unlikely to get you into remission without something else to calm things down like steroids, biologics or immunosuppressives. The first year is the hardest because you have so many questions and everything is scary. A really good book to read after a new diagnosis is: The First Year: Crohn's Disease and Ulcerative Colitis: An Essential Guide for the Newly Diagnosed by Jill Sklar and M.D. Manuel Sklar M.D. (Apr 26, 2007) You can get it on Amazon. It is written by a woman who has Crohn's and is full of good information. The Crohn's website at ccfa.org is also really helpful. Let us know how your appointment goes on Tuesday
Posted 12/9/2013 1:26 AM (GMT 0)
Thanks for all the support and patience! I'm sure it gets old and I tend to be a baby about things lol. DH went to gas station to get me a banana for now so I dont pass out....we will see how it goes!

When I first read about the steroids I was so scared, but now I'm like, just get me feeling better!
Posted 12/9/2013 3:49 AM (GMT 0)
I think what happens is we climatize. My crohns has been getting worse every year, I doubt it will ever improve. Every day food seems to be my enemy.

Just my experience.
Posted 12/9/2013 4:54 AM (GMT 0)
Sorry i dont have any advice. but wow this sounds EXACTLY like my life right now! i understand 100%
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