Surgery again

I just had stricturplasty on two strictures, full open surgery. funny thing is..I have been telling my GI that food wasn't going through, kept having obstruction issues, etc and he acted like I was nuts. Just so happens he returned my call at the hospital and looked at my surgery notes from my resection last year and it was noted I had two strictures, but because I had emergency resection it was too dangerous to deal with them at that time. Don't y'all think I should have been informed that I had strictures??? shouldn't my GI have known about them??
I'm just so mad because I could have cared for myself differently had I known and maybe added something to my Humira.
Sorry this is long....the other question I have besides my rant is...the surgeon said I had a portion of small bowell that has ridges like an accordion, anyone heard of this?
Also, I miss NCOT!!

Also, I miss NCOT!!

So do I... >.>

On a serious note, is it just me or do more and more people on this board seem to be having surgery? Anyway, I'm sorry you had to find out about your strictures that way, Inxspoo. Of course you should have been informed. Uh, sorry, I'm a bit confused. At first I thought you were going to have surgery, but upon re-reading your post it seems like you've already had it.

Hope the surgery helps, although I'm a tad surprised they left the TI/cecum in with active disease. Means you've still got to try to find a way of treating that, which is a bummer. Have you tried doubling the Humira dose yet?

@gumby - Yeah. Fifty years ago surgeons were merrily cutting out vast swathes of small bowel, because the more the better, right? Until they found out it made no difference to the recurrence rate of Crohn's whatsoever, and likely left some patients with short gut syndrome unnecessarily. I don't think surgery has ever fallen out of favour entirely, but at least nowadays surgeons try to preserve as much small bowel as possible.

As far as disease recurrence, let's face it, it will happen. I think, though, you have a good chance of being one of those people who have a prolonged remission, because you don't have overly aggressive disease. Only a small minority of people with Crohn's need to have resection after resection. I dunno what the average number of resections over a lifetime is, but I would estimate it at 3-4. Sounds a lot, but it isn't really. And you're older, so I doubt you will need more than 1-2 additional resections.

Fingers crossed of course.

I had the pill cam get stuck somewhere in my small bowel, and upon saying that, I need to ask more questions, because I'm not sure where. That was in 2013 and at that time I had disease in TI and more, they cut out about a foot, but didn't take it all because of short bowel syndrome. Why they didn't take out TI and the rest this time, I don't know, but I intend to find out! I just feel I need to get all my records and give a power point presentation at each GI appointment, so they can keep up and not dismiss my symtoms. Obviously, I know more by my symptoms than they do with all scopes, CT scans, MRI's and just ARG!!!!!