Please help...feel like I'm the only one with crohns like this

pretty sure we have folks who deal with constipation. i'm not usually one; it takes a drug reaction to do that to me. when it happens, though, it's really, really awful and by far the worst pain i've ever experienced.

my disease is also centered on the terminal ileum (or was, i no longer have a terminal ileum). the ileum is responsible for absorbing a lot of the stomach acids, so if it's not working right it can cause loose stools. maybe yours is working in over-time?

in any case you should talk to your GI about it.

I have had primary constipation with Crohn's in my ileum. Even after my resection in May, I went through D for about 5 weeks after surgery, and now I'm right back to constipation. I think I have Crohn's in my ileum, but also slow motility in my colon. Try exercise, stool softeners and Miralax as needed.

Omg, I have been dealing with the same thing. I got dx'ed in my teens and had terrible diarrhea. I'm nearing 25 and on and off for the past two years I have had terrible constipation episodes. I won't go for days then bam terrible diarrhea. I was hospitalized in March with a flare with bloody diarrhea and now back to constipation. I am on the new biologic vedolizumab and imuran and linzess mainly. I have to be scoped again this Fall to see if my bowel is on the mend so he's not sure if its inflammation or an IBS thing. In the meantime, my GI suggested Metamucil powder nightly to help retrain my bowel. Its been somewhat helpful but still don't feel completely evacuated and still hard and bloated belly at night. Just trying to hang in there, just wanted to let you know you're night alone!! Hang in,! Maybe talk to your GI about measures to get you back on track.

My Crohn's is also in the ileum and when first dx'ed about three years ago I had diarrhea, then suddenly switched to constipation. I take Miralax daily which works fairly good, but I'd take the diarrhea any day!

I've read these threads for years but never joined until now, because I have that EXACT same problem and always thought I was the only one, as well. I even convinced myself that my dx was wrong bc I can be in full flare and never have the runs once. My Crohn's is also in the ilium, and I've recently developed fistulas.

Lately I've been experiencing a new one, having constipation and diarrhoea at the same time.

Motility dysfunction can be a problem that occurs more readily with people with Crohn's and may be something to look into. I feel like I have pretty consistent formed BMs even when I'm super inflamed, it's weird. Even now, I think the D I get is from surgery and not Crohn's. When I get constipated I always fear a blockage.

Hi... You're not alone. This is my main symptom and has been since childhood. After many years this is what works best for me: small meals, very few raw vegetables, and exercise. Also in times of desperation ducolax before bed and occasionally I go on a course of taking metamucil in the evenings. If things are really bad and I'm in pain I go on bowel rest and have 5-6 ensure a day and no food.
I take Pentasa and Flagyl daily.

I go back and forth...it's usually D if I'm flaring, but when I'm not in too bad a flare, I get C...

So stupid. You are not alone!

I had C until I had my emergency resection...since then I had D. I remember being 6-9 years old and sitting not being able to go...my Mom used to come in and rub my back hoping it would help. I think C is more common than many people think....it's just those of us with D are more obvious when we are shoving family members out of the way and undressing on our way to the bathroom ;-)

I know this might seem stupidly simple. But have you tried squatting instead of sitting on the toilet. I think many people would be surprised by how much easier things come out.

You don't need to actually squat just put something under your feet (wastepaper basket, stool) to get your knees up. They do that in the hospital because its effective.