Newly diagnosed crohns in esophagus, beginning humira

First I was diagnosed with colitis last month, I begin asacol and did a strict scd/paleo diet. I do kind of a combination of the two because I can't tolerate raw vegetables, fruit, or beans. Most importantly from the diets is a low carb, grain free, high fat/protein regime. I've had a lot of results from this way of eating. Within two weeks of diagnosed I had regular bowel movements with no blood, no cramping, no gas. I was doing great, did four weeks of steroids, just as I finally went off prednisone I had this unbelievable pain. I had a sore throat, it hurt to drink water/eat, my tongue was so swollen and raw, my mouth gradually began to fill with ulcers, all along my gums/cheeks/roof of my mouth/under my tongue. It just got worse and worse, first they thought it was thrush, then I was in the hospital for a possible reaction to asacol, then viral infection, and then my gi did a scope of my esophagus and thinks its crohns in my esophagus. My gi thinks I have crohns of the colon and esophagus exclusively. So I'm off asacol, back on prednisone and waiting to begin humira. It's so extreme, my recent colonoscopy shows my colon is almost all cleared up, near remission. I understand crohns of the esophagus is really rare, so maybe humira is needed. Anyone have experience with crohns in the esophagus? Experience with humira? Isn't it strange to begin humira right after diagnosis? I got sick only 5 weeks ago.

It's not that strange to go straight to biologics, Almonds, especially for disease outside of the colon. Other than Pentasa, there are no mesalamines to treat the small bowel, where many people with Crohn's have active disease. Even though Pentasa is active throughout the entire digestive tract, I doubt it would be effective in your esophagus.

Have your DRs considered other sources of these upper GI ulcers? I'm thinking specifically of shingles. My MIL had shingles in her throat - I don't know if that's something you talked about with your DRs.

Edited to add that I did a little googling on this and I really do think you need to talk to your GI about other causes of this esophagus stuff. see this link:

www.atsu.edu/faculty/chamberlain/Website/lectures/lecture/GI3.htm

the ulcers in your mouth are fairly common with Crohn's, but I agree it is rare, but not impossible in the esophagus. I'm sorry you are going through this. I was thinking shingles or a viral infection too...but it sounds like your doc is on top of things

Depending on your age and how severe your Crohn's is, some docs will want you on the "big guns" quickly. It seems Asacol and diet aren't enough to control your disease right now. 6MP or Imuran be another option to discuss.
Personally, I've had great success with Humira (started it 1.5 years after being diagnosed). Getting used to the injections takes a little while. The list of side effects is scary, but most of those are rare. Good luck figuring out next steps.