Wild Oregano Oil/Thyme Oil results for Crohns-Coltis or Crohn's isolated to the colon

NiceCupOfTea said...

pmedic said...
If I had listened to the negative ldn bashers, I would probably have died, lost my colon or did something to myself

And if I had listened to the endless stream of "positive" people on this site promoting their bonkers therapies I would either be dead by now or have had emergency surgery.

I don't understand why it such a problem to let others talk about what may have helped them. No one is saying it is a cure all. Some of us don't have much hope left so we are willing to try anything even for a slim chance it may help. Many times some alternative therapies do help someone.

After my bout with c-diff, I remained sicker than I could stand but because someone posted how much ldn did to help them, I tried it and it helped me. That is why no one should bash others for voicing what has helped them. We are all different. If people are afraid to voice what has helped them in fear of being ridiculed, no one benefits.

Personally, I think all negativity should be left at the door. This should be a drama free zone. No one comes here to argue. Take care.

CanadaMark....I am at work so I can't spend a lot of time reading your notes yet, but WOO (I kind of like that abbreviation ) is sounding like something I want to read up on. I posted about resorting to some natural antibiotics a bit a go (I am far from a a naturopathic believer, but going to try it along with traditional meds). Like you I have tried a lot of the diets and well...no pooping luck. Even SCD didn't work out well---I followed directions too! I self-dx'd me (yeah I know but when the docs give up I go with my deer stalker hat and magnifying glass) as bacterial overgrowth. Oregano oil was on the list of things to try. Was going with peppermint at my last post...but oregano sounds more compelling to start with now.

Hope this continues to work for you....

I don't post often but I do stop in and browse fairly often. My biggest reason for not posting is because of what I see in this particular thread. Funny that it spurred me to post, instead of moving on. I will, no doubt, upset or offend the bullies. To that, I will just say, get over it already, you're not that special.

Living with crohn's colitis for the last 35 years has taught me that not all medications work for all of us all of the time. Some meds work wonderfully, and then they don't. Doesn't mean that they were 'bonker therapies' or that they weren't really working in the first place. Even though I've been on the biologics (humira, remicade), I personally believe that anyone who intentionally seeks out a drug that includes death as an acceptable side effect is bit bonkers anyway. I was once miserable enough (bonkers?) to use them.

Over the years, I've been desperate, like many others. I used to roll my eyes at those who resorted to alternative ways. I look back and laugh at my own attitude. How silly is it to look for an appropriate, natural, cost effective way to treat my condition? Maybe I should be rolling my eyes at the side effects that include death, instead.

Canada Mark, one thing I noticed that you said, was that you couldn't eat tomato sauce, or wheat. Until I started growing my own tomatoes and making my own sauce, I couldn't eat tomato anything. Wheat products destroyed me. Gluten free doesn't mean pesticide free. When I eliminated pesticides from my diet, I could eat A LOT of things that I thought I couldn't.

Just eliminating pesticides and aspertame can make the difference for so many of us. FYI, aspertame is in almost every food and beverage on the market. As much as I used to roll my eyes at 'tinctures' and 'herbs', I now use them regularly. Our diseases are individual to each of us, and our treatments should be just as individual. Some people just want to take a pill and be done with it instead of taking an active part in their own treatment. I say, good for you, and don't give up.

Thanks to CM you can count me on being Bonkers and healthy for over a year now. I started the WOO regime about Oct of last year. Like Mark I had a bumpy ride coming out of the gate, so bad that I stopped for a week, then picked it up again and haven't hardly looked back. I can fully understand someone that hasn't found something that has worked for them to be frustrated and that is acceptable by me. I have had UC for nearly a decade now and have tried many many different natural remedies. Some worked, some didn't and a lot worked a little for a little while. Now do I think with WOO I'm good for decades more? No by no means do I think I'm over the hump, but currently I'm doing great and I know I have WOO to thank for that and of course CM. And when the WOO stops working, which it probably will at some point, I will look into the Bonkers forum yet again for something else to try. I would rather try and fail then just hand my life over to some Doctor and Pharm company that treats from the UC playbook and just thinks of me as another case number.

If trying, researching and sharing experiences is Bonkers, well then I'm in and I hate to think of what the other side is all about if opening it up to one another is considered Bonkers on this side of the fence.

Saw this thread offline. HW boots you off every so often.

To that, I will just say, get over it already, you're not that special.

Neither are you, love. You're welcome.

Living with crohn's colitis for the last 35 years has taught me that not all medications work for all of us all of the time.

Gee, really?

After losing my colon after 11 years of unremitting disease which didn't respond to a single med or dietary change, thanks for that amazing statement of the bleeding obvious: I would never have known about this otherwise, unless you had spelled it out for me.

Okay, I'm logged in now, so as soon as I click 'submit' this thread will become a million times better - by disappearing again.

Most herbs are meant to be rotated a month or two on and then use one with similar benefits for a month or two. This would help so organisms don't build up a resistance and to minimize any possible side effects. Cats claw is an herb with many benefits for crohns and Lymes,etc. and is meant to be rotated. The debate hear has been interesting. Many readers have the capability to read and then do there own research weather it's a med or an herb, or other supplement. however, many do not have the mind set or time, and take whatever recommendation blindly. Not all things are going to help all people due to there different genetics.

Xmas update:

Still going strong here, once a day, fully formed and no discomfort - Taking WOO/Thyme oil in a gel cap every morning along with Vitamin A & D at the same time and a WOO/Thyme Gel cap at night with Vitamin A&D and Imuran in the evening.

Here is what I tried though over the the last few weeks (unsuccessfully) which did lead to some discomfort - I decided to try adding kefir of all things. www.liberte.ca/en/products/organic-non-effervescent-plain-kefir/

Needless to say after a few days my body wanted nothing to do with it. Stool loosened up and eventually I was twice a day in the bathroom. Could have been the lactose, but I've tried a few other probiotics (without any lactose) over the last while with similar results, so perhaps both the lactose and the probiotics contributed. Now if I get a craving for something yogurt'y plain old home made SCD yogurt works best for me and causes zero issues. It's taken me a while to realize that most likely my body prefers no probiotics.

Stopped the kefir after about two weeks or more. I stayed on it for a while because I was curious if things would ultimately "adjust" and get better - within two days of stopping stool was back to normal and formed as before, which was good because xmas was approaching fast.

Perfectly normal since then and over the xmas holidays. Actually it was the first Christmas since becoming ill where I could go out freely and just simply enjoy family, stay late and drive distance to see them without any concern whatsoever. So that was a pretty awesome and welcome feeling. Best Christmas prevent ever to be honest. I just kept to my safe foods list and all went perfect.

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In regards to the comment above of herbs being meant to be rotated, that's not true nor has it really been found or firmly established in any formal studies. But perhaps in the future something will come out to show some sort of resistance over time. Below if a few you can look through that touch on this subject or just search around yourself via pubmed or google.

Again I take this with Imuran. Back in the 70's or 80's it was realized that antibiotics have anti-inflmamotry effects and Azathioprine (Imuran) has antibiotic effects against some bacteria. I could dig up some studies on this on the UC board as there have been a few posted. So Imuran perhaps is a significant contributing factor in combination with the WOO/Thyme. Who knows really though. I just don't want people to attribute it 100% to the oils - and remember things didn't really "click" until I added Vitamin A&D to the oils and the Imuran. This was the big turning point.

Evaluation of bacterial resistance to essential oils and antibiotics after exposure to oregano and cinnamon essential oils. www.ncbi.nlm.nih.gov/pubmed/22827568

Essential Oils, A New Horizon in Combating Bacterial Antibiotic Resistance: www.ncbi.nlm.nih.gov/pmc/articles/PMC3950955/

Mark
thanks for the info. I will tuck this away for when the Remi stops(and it will stop, we know that)working. I have maintained,since my son first got sick, that Crohn's is not one disease, and that calling all inflammation along the digestive tract Crohn's is one of the reasons that a cure is so elusive.
As for those poo-pooing the use of oils, ASA was derived from birch bark, penicillin from bread mould, almost every painkiller and anaesthetic out there originated as a flower.
The antibiotic properties of certain oils and the relief you have been given give me one more option to fall back on. Hell, if someone tells me that spinning around three times and spitting on a rock, under the light of the full moon would lift this curse, we'd try it. As long as it doesn't make things worse, it's worth a shot. the total loss of hope is what scares me.
the fact that antibiotics have an effect on the disease, confirms for me that this label, autoimmune, just means the Drs haven't found the cause. the fact that some Dr.s are willing to try antibiotics, means to me, that, thankfully, the mindset is changing.
My New Years toast is to the day that this forum shuts down due to lack of interest, because Crohn's has become a minor, curable irritation.