I have been fighting GI issues for years but just assumed they were genetic since I have a strong family history with everything from stomach and colon cancer to diverticulitis. At 28 I had my first hospital stay with what I thought started as a stomach bug then a UTI both with antibiotics Rx (i am allergic to MOST antibiotics already and its always a hit or miss with how i will react to any meds). Upper scope (done by a different dr) came back clear and no signs of Crohn's yet both my PCP and GI kept pushing the crohns Dx so I had my first lower scope done and biopsies came back negative. Life went back to almost normal although i dealt with random occurrences of stomach pains (usually following the taking of any kind of over the counter meds whether it was Tylenol or even vitamins of any kind) but they always passed with time. 2 years later I had another UTI which resulted in more antibiotics and 3 ER visits that just kept getting worse and ultimately i had a bowel obstruction. 4 days of IV meds helped and i was lucky to avoid surgery the day before Christmas eve last year. but this year has been torture. i may have a few weeks of comfort only to be blindsided by another round of horrible pain and rounds of EXTREME diarrhea then constipation. (again following any kind of OTC meds or Vitamins trying to make myself feel healthy again) CT scans keep showing inflammation in the same spot and my 2nd lower scope determined an infection in that spot so more antibiotics were Rx'd. 10 days of HELL! the pain got so bad i couldn't think straight couldn't function was horribly constipated and couldn't keep anything down at all yet my body felt like i was STARVING. CT scans done less then 2 weeks apart show the same spot of inflammation that has grown drastically while on the antibiotic and both of my drs neglected to tell me that the reports said anything about
multiple ovarian cysts and even an abscess i found out after 2 weeks of waiting following each to view the results myself of the hospital website... now once again my biopsies came back negative for crohns. my IBD blood work is positive for crohns and the dr is considering starting me on humira! I AM COMPLETELY TERRIFFIED!!! I keep hearing all these horror stories of misdiagnosis and the side effects of Humira... i am not even 100 lbs and cant afford to loose anymore weight let alone the fact that my immune system has never been very strong to begin with... I am 31 and at this point I'm on the verge of loosing my bowels according to my Drs but after 3 years of no definitive Dx I'm terrified of what will happen next... Could this be an allergy? something in the binding agents used in meds?
