After almost 9 years, diagnosis is not definite

Things were going down the hill lately. I got an ear fungal infection which caused severe inflammation and a polyp. The polyp recurred a week after so this inflammation was claimed to be autoimmune. The ENT recommended that it's my GI who should treat this ear problem since it's autoimmune.
So, I saw my GI and he said he needed a second opinion to confirm whether it's inflammation of either the external or the inner ear. When I asked him whether now my diagnosis is definite and I have Crohn's, he said your biopsies are not conclusive. These biopsies were sent to several labs and throughout the years all the results I got were ileocolitis, chronic proctitis and the last biopsy in 2014 showed ileitis. He further added that the chronicicity of my disease suggest Crohn's. Add up to this I'm responding well (in his opinion ) to Crohn's meds and my condition is not becoming worse (clean scopes). I feel crap. This is the only doctor, who believed in my symptoms and that they are something other than IBS, treats me based on assumptions. So, it's no wonder that the others treated me as a typical IBS patient who should hit her head in the wall because of unbearable pain.
Is this really normal? I can't believe it. In the last 8 years,I saw doctors as far as I can count even foreign experts, who were visiting my country, but no one could pinpoint the cause of my abdominal pain, diarrhea, weight loss and fatigue. And if these are all suggestive of Crohn's, why doesn't this da**** disease appear in biopsies?

Lamb61, thank you so much. My pancreas enzymes were never tested before. I'll ask the GP to have the tests.
Take good care :)

Gypsyfp, you're right. Not having a clearcut diagnosis is like living in limbo. I know that there is something wrong w both my intestines and colon. I'm pretty sure I have proctitis. Even my GI didn't deny that I have a disease but he can't call it for sure Crohn's. The years taught me to cope w this disease no matter what it's name might be.
Take care :)

I agree that getting the label can be a very frustrating process. I am still waiting for the final conformation myself and sometimes I het so frustrated with it all that I would like to scream and cry. Unfortunately it seems to be part of the very nature of this disease that biopsies do not always offer the much needed solution. I do believe though that if it is Crohn's, it has to show up on a biopsy. Somewhere, somehow, someday. Please hang in there!!