Crohns Disease in remicade Treatment

I am on Remicade. I have been on it for almost 5 years now with ZERO problems. I get a migraine the day or two after an infusion, but that's it. Remicade literally saved my life. I have had fistulae, abscesses that have caused sepsis, and extremely severe Crohn's. I am currently 29 weeks pregnant and have been on Remicade the entire time, and also through my first pregnancy. My daughter is now 2 1/2 and is completely healthy and fine.

There is a slightly higher risk for cancer, but it is not that high. Often we hear things like (and I am making up these numbers) "it triples the risk of cancer" but if the risk is only 2% in healthy people, then it only goes up to 6% which is still extremely low.

I would say that being on Remicade is much safer than not being on Remicade and being in awful flares.

Letting the disease go uncontrolled is more scary then any of the medications. The disease itself can put us at risk for cancers. The longer it goes out of control the more damage is done, the higher risk of complications and surgeries.

I've been on Remicade for the past year, and doing very well. My doctor told me today that I am in remission.

Yes, I am in the US. There is a program called Remistart that can help pay for Remicade costs. Your GI's office should have information about it and how to enroll. Do you mean repeating the colonoscopy after 6 months? That might be your doctor's usual policy, but it isn't necessary. It is good to help see if Remicade is working or not.

congrats @jen77 on remission! :)

Hi

thanks for your response,no he got detected only in US that too 4yrs back

when they did colonoscopy they showed me Ulcerated Stricture in 4-5 place causing to much narrow,but doctor advised us to take remicade but we skipped becoz of side effect and we followed medicine in Siddha
but accasionally he experience pain very often that made to get second opinion to Mayo clinic but they also confirmed that he needs to be on Remicade

in small intesine about 4-5 places Ulcerated Stricture & even on large intensine(1or 2) but mostly 3-4 places in small intestine but doctor advised in such a point if we dnt take remicade its gonna spread other places that will end up in surgery.

please suggest

With so many strictures in large and small intestines, any reason why surgery is not suggested by doctors?