Speed Bump . . .

Have you ever had a good day, and you're looking forward to something special in the future, and ... Bam, you remember. . crap, I'm not healthy. I can't plan that. Bummer.

oldchrohnie,

I can relate to that. I noticed that the longer I've had the disease/the older I get, I try to focus on the positive more though. The things I CAN do.. and the fact that the disease is a part of me, but does not define me. It sounds cliché, but it's so true. I still have times like this though. My boyfriend is planning a visit with his family in a couple months and my co-workers are going away on a weekend getaway.. both of which I started to plan for and then had that moment of thinking- Oh my gosh.. I'm in a flare and my health is on a rollercoaster right now.. I better cancel. I try to NOT do that, like Duffle said, and just live my life, but realistically it's not always that easy at least for me. So.. long winded answer, but I do identify with what you're saying!

Yes, I've been I a flare for almost a year and I've missed out on so much. I especially miss going to my son's events like piano recitals, karate testing, etc. sometimes when I'm having a good day, I will think I can just go back to regular life, or plan fun stuff. but then at the end of the day I have used up all my energy being "normal" and am drained. Unfortunately I'm not tolerating any of my meds so at this point I don't know what's in store for me :-(
But, do have a support system, so at least my son is not missing out on any of the fun stuff

gumby44 said...
I can totally relate, it is really hard, and I don't have any good answers. I hate the thought of giving up and just sitting in my house missing out on life, but I can't even count how many vacations or events that I attended while feeling terrible and just trying to survive. It is tiring and although I try not to focus on it, it is one of the greatest losses of my life

I'm already at the sitting in my flat and missing out on life stage. I do think of ways to try and counteract it but I just don't have the confidence or the energy to do anything else at the moment. I was invited out to Spain this Easter and I was going to go, but I've changed my mind. I don't want to mar a holiday with feeling terrible and barely able to eat any of the local cuisine. I'm hoping that the offer will remain open to me in the future, since my aunt has a house in Spain.

I really, really, really hate this. While I was ill for so many years with Crohn's, my life was put on hold. I had the internet and my parents as my social life (and the latter I didn't always get on with, to put it mildly). When I had my first surgery, I was no longer ill (although I had two horrible drug withdrawals which complicated things for months afterwards), but I was jobless, friendless, and everything else-less. My life lay about me in ruins. Meanwhile, things deteriorated at the parental home. It took over a year of extreme stress before I finally got my own place.

Getting my own flat was meant to hopefully be the start of a new life, but in reality it wasn't. If I'm not battling Crohn's, then I'm battling depression. If I'm not battling depression, then I'm battling Crohn's. There seems to be no escape from this cycle. Sorry, I said far more than you probably wanted to know about.

I know this all too well. I have actually resorted to limiting my diet prior to events that I know I don't want to miss. Unfortunately, right now the humira isn't working so neither is my go to strategy. I had to cancel on my DIL last week because I didn't want to have to use the bathroom at her mom's house. I just don't know them well enough to go in and stink bomb the place! lol Now all I have to do is get through the wedding in June....