Neurologist f/up visit yesterday---oh goodie one more thing

Crohns 25+ years, joint pain assumed RA, burning tingling in my legs and hands and bingo sensory neuropathy...go to follow up and guess what....my labs came back on "the high end" for scleroderma/raynauds. Waiting for the labs to show up in my automated system for better interpretation...but dang. Reading up on scleroderma/raynauds----ok that makes a lot of what I am feeling make sense. 20 years of being basically being a lucky chronie are shot to he-double hockey sticks.

Sigh.....nothing to see here...move along.....

Aw geez Habs. I'm so sorry you are getting yet another dx. I think we should be able to stop after 1, don't you think!? Hang in there sending good thoughts and (((hugs))) your way.

Thanks guys! Preparing for my big 5-0...and it seems my body just decided to go berserk. hahahaha. Really getting this diagnoses is kind of a good thing. There have been a lot of unexplained things (SUDDEN complete exhaustion was a biggie) that were piling up. The sensory neuropathy explained many but not all. So far I have found that the exhaustion and headaches and maybe the many years of earaches may be explained by the new diagnoses. And yes I have the really cold sensitivity too Sci (Western NY is not the place to deal with that)!

Unfortunately, no treatment plan for anything right now. The neuropathy I am just going to use external lidocaine gel until it gets "more worse" (won't take the Cymbalta). Will see neurologist only if it gets worse. Neuro is the one who tested for and found the scleroderma/raynauds markers - as with every test...I was still within the "normal" range, but just barely. I was retested yesterday to see where they stand. When those results are in, I will see who treats that. In the meantime, going to talk to my gastro for an appt and discuss the joints and the potential for Humira. Fixing my joints would help the neuro...only because the left leg is painful from the neuro, but the right knee can't support me without a lot of pain---wow I really am crumbling! JENGA!

Question Everything ... if you could write that script for a 2 week cruise every year, I would be happy. I actually like living where I get snow...but we missed our usual end of January vacation this year (I was too cheap to consider one). We just had record snowfall last week and that changed my perspective a little...I always say I like snow because snow only kills stupid people, earthquakes tornados hurricanes etc kill randomly! I just am getting old for the cold!

Now I am singing it's 5 o'clock somewhere in my head!