Non-Crohns Pain Management

Paracetamol and codeine or ibuprofen. I'm sure that taking ibuprofen on a daily basis for weeks at a time is a bad idea, but with so few options for pain relief I'm not going to be guilt-tripped into stopping it completely. I take it about once a week on average and if it causes GI ulcers, tough luck - I already have Crohn's anyway, not like that's going anywhere.

For menstrual pain, it's worth considering taking birth control continuously so you don't have your menses. If I skip even two days of pills, I get horrible migraines, so I've been taking Sprintec continuously for nearly four years and haven't had my period since. As my OBGYN constantly tells me, there is no medical reason for you to have a regular period and stopping that process should not have negative health consequences.

I have tried many drugs for pain, including Lyrica and Gabapentin and low-dose NSAIDs like Celebrex but the side effects are always worse than the benefit. I avoid true pain killers unless absolutely necessary (because I don't like how they make you feel and they can back you up), but I take Tylenol regularly and Advil occasionally. I have specific meds for my headaches/migraines.

Hope this reaches you and you can pass this on to the others with your symptoms. You are describing Acute Intermitent Porphyria. AIP
I got my porphyria diagnosis in 2008 along with Crohn's from my Gastroenterologist, tests performed during attack, supposedly hereditary, but no one had ever suffered from it, and I was developing worsening other neurological symptoms, basically symptom diagnosises with no cause.
Cutting edge microbiologists have found that it is being induced by mycoplasma, specifically the following;

My IBS eventually became Severe Crohn's, and I already had other supposedly unrelated, fatigue, hypothyroid, pain, joint issues, neurological attacks, migraines...etc. Praise God that I "stumbled" onto the cause of all my issues. No drastic measures needed. Every symptom of unhealthy that I kept describing, one common cause, CDC and NIH literature both said was epidemic and linked to every symptom, and more. Please give this a try, look into 2 things. First, go into the Veterans Administration's Wesite for the criteria/symptoms for getting disability for Gulf War Illness. Then look up everything relating to a nasty little bacteria called Mycoplasma Fermentans (Incognitus Strain). Then when you know that you can convince your family doctor, take literature with you, try antibiotic therapy, long term, like for malaria or cystic acne. Preferably, as discribed in all the mycoplasma literature (for me, Doxycycline 300mg a day). My diagnosed Severe Crohn's is almost completely resolved after 9 months, with other symptoms still very slowly improving, but then I was in Stage 3, 24+ years of suffering. Do follow the entire protocol, and if you have severe Herxheimer reactions when put on the medication, then you are on the right track! www.mathew1026.com/gwi