Posted 5/10/2016 1:37 AM (GMT 0)
I've had Crohns since 2002. I've had 5ft of intestine removed in 2006 and been in remission and off meds since. I recently, within the last 6 months had a flare of a new kind. Perianal abcsess and fistulas. I have a drain in the abcsess and 3 Seton's. I tried Remicade back in 03/04 no problems but just this April 18th started it again and 2 weeks after the infusion had severe joint and muscle pain where I couldn't even get out of bed, use the restroom, or shower on my own and no amt of pain meds from Norco to Percocet and Tylenol helped take the edge off. The pain lasted 5 days and traveled from my arms, fingers, wrists, knees, ankles, pelvis and jaw and throat. It was awful. I did blood work and both my GI and my surgeon don't think it was a side affect of Remicade but what else could it have been?? Anyone else have this issue? I have my second infusion tomorrow morning, since my Dr doesn't think it was the Remicade, the show must go on.