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Posted 5/30/2016 2:32 PM (GMT 0)
I dont know whats going on with me. I know i usually have to take an afternoon nap. But for the past few days i cannot function due to extreme fatigue. A nap doesnt even seem to help. What should i do? What could be causing it? Who all is having to deal with extreme fatigue?
Posted 5/31/2016 12:22 AM (GMT 0)
Could be de-conditioning, inflammation, anemia, deficiency of certain vitamins, flaring, depression, thyroid
Do any of these apply?
Posted 5/31/2016 2:01 AM (GMT 0)
Yeah, there are so many possible causes for fatigue, it's hard to know where to begin. Just to add to Dikid's list, some medications are heavily sedating - you haven't started any new meds recently?

Occasionally in Crohn's, fatigue can also be the first symptom of a flare-up.
Posted 5/31/2016 2:50 AM (GMT 0)
Well my gi told me i was in remission back in march. But recently ive been dealing with bad hemmies, lots of D, belly pains, fatigue, headaches, sores in mouth, tonsil stones, and a new food intolerance...ice cream. Dairy use to not bother me. But since i ate some ice cream today ive had nonstop belly pain and major frequent D. My gi dr is still on maternity leave so my only option is the er. I have only taken tylenol for pains. And occasionally ibuprophen. I know thats a no no but i dont want to take narcotics. My gi dr hasnt checked for vit deficiencies in a very long time.
Posted 5/31/2016 1:06 PM (GMT 0)
What meds are you taking?
Posted 5/31/2016 1:14 PM (GMT 0)
Bucko,
" And occasionally ibuprophen." Let me be the heavy here. DO Not Take NSAIDS! They are counter productive.

Tramadal is a pain killer, may work. At least it works for me when i need it. Then, there is a stiff drink to knock the edge off, should you tolerate a stiff shot.the shot alone without any painkillers. How much walking are you doing? That might help also.
Posted 5/31/2016 6:09 PM (GMT 0)
What meds are you taking?
Posted 5/31/2016 6:41 PM (GMT 0)
I take Methotrexate one injection weekly 6 milligrams of entocort folic acid vitamin B12 vitamin D Cymbalta and Bentyl as needed
Posted 5/31/2016 6:45 PM (GMT 0)
I know I shouldn't take Ibuprofen but I don't have any pain meds. I called my GI doctor and they said they do not have any appointments but for me to come in at my scheduled appointment which is in July 24th for the time being they told me to go to my primary care physician I am on the way there now more than likely they will just send me to the ER that's what they usually do
Posted 6/1/2016 2:39 PM (GMT 0)
What a run around, get a hold of your insurance co ask about clinics ect instead of E Rooms cost quite a bit less, explain you are trying to manage costs, appeal to their greed. I rarely take pain meds so I have more than enough on hand all the time.

I hope you got something.

I'd be likely to drop a note to the state medical board, they take on customers, but can't handle them when it's a crisis. dropping a line to letters to the editor may also help. Rock their world a bit, maybe? 7-11 rule.

T
Posted 6/3/2016 9:24 PM (GMT 0)
Well i still feel crappy. It doesnt matter what i eat my belly hurts. Im wondering if my ulcers are back. In dec 2014 i landed in hosp for severe belly pain. Turned out i had lots of ulcers in the small bowel. Im hurting the same way. My belly hurts like stabbing pain and burning. I cant eat anything without being followed by pain. I finally got my labs back. My iron is 12.7. Wbc is 9.7 rbc is 4.0 crp is 6.9. Is the crp high. My ******* dr never gave explaination of results.
Posted 6/3/2016 10:04 PM (GMT 0)
Yup crp is elevated that indicates inflammation.
Iron at 12.7 is low, did you mean hemaglobin?
Are you losing blood?
Bentyl can cause drowsiness
Hot water bottles can help with pain
Maybe try a low residue diet until you get more answers.
Posted 6/3/2016 10:24 PM (GMT 0)
what exactly does a low residue diet consist of?
Posted 6/3/2016 11:27 PM (GMT 0)
It means low fiber and residue is things that can irritate your intestines on the way out. Think of it as anything you can see in your poo (peels, nuts,seeds, corn)
As well as whole grains, tough foods

Thinks like salmon, eggs, very soft well cooked chicken, peeled white potatoes, applesauce, white rice, pasta, bread...
This will not help with inflammation but it can reduce symptoms.
You can supplement with shakes or smoothies or puréed foods.
Posted 6/4/2016 12:10 AM (GMT 0)
i was just at a cookout. And of course they had hamburgers, hotdogs, and fried chicken. 3 major no no's for me. So i ate some pasta salad. Now i feel like i could just throw up. Also i had to leave the cookout due to needing use the bathroom...major D. Maybe ill quit eating. Then i wont have to worry about the outcome. Ugh.
Posted 6/12/2016 10:35 PM (GMT 0)
i finally got a response back from my gi. She told me that my crp of 6.9 is not elevated. Apparently aaccording to new studies the normal range is anything below 10. So she still thinks my problem is ibs rather than ibd. Also medicaid wont pay for a pill cam with "normal" crp. So that wont be happening.
Posted 6/14/2016 3:53 AM (GMT 0)
I don't think that 6.9 is highly elevated. But I do think there is some kind of inflammation.
Maybe request a fcp and esr/sed rate
Posted 6/16/2016 2:38 AM (GMT 0)

Bucko said...
i finally got a response back from my gi. She told me that my crp of 6.9 is not elevated. Apparently aaccording to new studies the normal range is anything below 10. So she still thinks my problem is ibs rather than ibd. Also medicaid wont pay for a pill cam with "normal" crp. So that wont be happening.

6.9 is a little bit high, actually. My hospital sets the normal limit for CRP at 5, though that said no health professional I know would take a CRP of 7 seriously. But CRP is not an infallible guide to inflammation - in fact some people's CRP never rises, not even during an acute flare-up. I think doctors set too much store by it for diseases like IBD.

Does your doctor do the faecal calprotectin test? If the pillcam isn't available, can you have an MRI/CT scan instead?
Posted 6/16/2016 2:57 AM (GMT 0)
I mentioned once before about doing a fc test. She wouldnt even respond to it. I know she wont put in an order for a mri or ct cause my crp isnt "elevated". Back in july 2015 i had a crp of 2.1 and had cdiff. I was in the hospital for a week. I suppose ill just tough it out til my next appt which is july 20th. If things get severe then ill go to er.
Posted 6/16/2016 3:21 PM (GMT 0)
I'm beginning to think this GI of yours doesn't sound very good. She seems to be relying way too much on the crp result, yet won't consider an alternative test for inflammation. Can you see another GI?
Posted 6/16/2016 6:36 PM (GMT 0)

NiceCupOfTea said...

Bucko said...
i finally got a response back from my gi. She told me that my crp of 6.9 is not elevated. Apparently aaccording to new studies the normal range is anything below 10. So she still thinks my problem is ibs rather than ibd. Also medicaid wont pay for a pill cam with "normal" crp. So that wont be happening.

6.9 is a little bit high, actually. My hospital sets the normal limit for CRP at 5, though that said no health professional I know would take a CRP of 7 seriously. But CRP is not an infallible guide to inflammation - in fact some people's CRP never rises, not even during an acute flare-up. I think doctors set too much store by it for diseases like IBD.

ok, I normally dont like to say that a doctor is not a good doctor, becuase its hard to get the entire perspective of what is going on, just by reading an online post.
But from what you said it is slightly alarming to me that she will not respond to your questions.
also, CRP is supposed to be at zero. if it is slightly over that (and each lab has their limit) it indicates inflammation, it is not neccesarily a cause for concern but it is something to take note of.
the way crp works is that (in about 80% of people) when we have inflammation our body produces c- reactive protien.
based on the fact that you had C. diff and it was slightly elevated at 2.1, being 6.9 may be considered more elevated for you. doctors need to look at bloodwork for each patient based on their personal trends. NOT on guidelines which are not specific to each type of situation.

what geographical location do you live in? maybe its time to find a new GI
generally finding one who practices out of an academic institution that has an IBD center, and one who specializes in IBD
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