So pissed off

There is absolutely no communication between my hospital and my GP surgery. Absolutely none at all. None whatsoever. If lives depended on it, they could probably couldn't get their act together to save any of them. My GP won't prescribe me 6MP because she's not getting the blood test results (like what does it matter to her? The hospital is meant to be responsible for monitoring my bloods, which is why I'm having to trek all the way to Luton & Dunstable instead of my local GP surgery to get my blood tests in the first place). But it is impossible, so it seems, to get anyone from my hospital to get in touch with my GP. The conpetent IBD nurse has buggered off, leaving god knows who in her place.

Tried phoning every number I could think of this morning - IBD nurse, GI secretary, somebody else I didn't recognise - and all three just had ****ing answering machine messages. What's the point of a secretary who doesn't answer the phone, seriously?

I run out of 6MP tonight. Even if I get the prescription today there's no guarantee of getting my medication today, in fact I wouldn't. I'm seriously on the verge of badly losing my temper with somebody. Meanwhile, I'm meant to be going on a merry jaunt 300 miles up north today for a few days to stay with my brother. My plan was to stop off at L&D, pick up a prescription, get my blood/stool tests done, then hop on the M1. It's almost on top of the hospital. Some lucky people get a view of the Dunstable Downs from their ward windows; I just saw hideous concrete outbuildings and a motorway from mine.

I tried to sort all this out last week to absolutely no available. Yesterday I couldn't go to the hospital because the garage took at least two hours longer to service my car than I thought they were going to. (Not entirely their fault, as I got the car in a bit late. Thought 10-ish would be sufficient, but it turns out I should have come in at 8-ish.)

I'm gonna send a very short message to an IBD nurse now. Still incensed.

Post Edited (NiceCupOfTea) : 7/5/2016 4:16:10 AM (GMT-6)

Think at this rate I should just start my own blog, tbh. #BlogWell

Met up with my social worker in Costa Coffee at 1pm, an appointment that had been planned last week. Well, she's not really 'my' social worker as such; she's a student social worker who is working with me for a few weeks over the summer. Practically had a breakdown I was so upset. There's other stuff going on which I left out in my previous posts. Nothing exactly life-changing by itself, but it all adds up. I didn't realise quite just how much it had all added up to until today. I can't really speak to my parents about it; my dad just makes massive mountains out of molehills and fixates on certain things, thus not only not helping, but making things worse.

This business with the 6MP, while small beer by itself, has just been the last straw for me. The social worker rang my hospital and left a message; the secretary rang me back a few minutes ago. The hospital thinks my GP ought to be prescribing the 6MP by now; my GP keeps on refusing to do it. Got upset all over again with the secretary and told her I can't keep on going through this every month. I seriously can't. I don't give the faintest sh!t who prescribes it, I just can't go through this every month. (You used to be able to get 3-month prescriptions but now the longest prescription is 28 days.) The secretary said she would fax over my blood results and speak to my GP.

I'll probably leave the blood/stool tests until next week now. Means delaying Entyvio by a week but I'm probably gonna end up waiting 6 months for that drug anyway. Would have rather have got it done today, but not gonna kill myself to do so.

Final update (you hope >_>). Phoned up the surgery and apparently the 6MP has been put through and is ready for collection, along with my other meds. Deffo starting the antidepressant - today has made me realise I'm not really coping with life at all at the moment. Still half expect the meds not to be there but if they're not, then they're not. I'm gonna have a final cup of tea then be off to my brother's. Fully expecting to take several major wrong turnings and not get there until 3am.

Post Edited (NiceCupOfTea) : 7/5/2016 8:55:10 AM (GMT-6)

I'm so sorry this has all been such a hassle, but it sounds like it is getting worked out. I hope the new antidepressant is better and I'm happy you are willing to try it. Try to get some good relaxation at your brother's house.

That stuff happens to me all the time too. People are always giving the run around and it's frustrating because it is their job to serve their customers. It's as if everyone is really lazy or disengaged. I think it's great that you're seeing a social worker, even if it is temporary. Maybe it will help... Antidepressant can be really helpful when you're in these types of downs. How are you feeling? Things improving at all? Did you get a date for entyvio or just know it will push back a week? In the US the the script is usually good for a year once you're stable and you've had good blood work consistently. I have had different doctors with different levels of responsiveness to renewing prescriptions. People are so frustrating.

Oh geez, that all totally sucks. Email me the pics! Lol. I am glad you made it safely to your brother's. PLEASE bawl out your doctors. They totally deserve it at this point.

NCOT - I have had the exact same issue getting my methotrexate - turns out my GP practice was accessing the wrong database for hospital blood test results, which is why they wouldn't prescribe it. I threatened the practice with a formal complaint to the local health authority and suddenly they were all apologies and my methotrexate was at the dispensary for me to collect the next day (a full months supply woop!). LEt them know they are there to provide you a service, and threaten to make a formal complaint -they won't want that. Be strong :)