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Your Humira experience ?

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Crohn's Disease
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Posted 3/2/2017 12:23 PM (GMT 0)
Please tell me about your Humira experience . Doc wants me to start it . Thanks gang . wink
Posted 3/2/2017 12:46 PM (GMT 0)
No issues for me. Although, it has not put me in remission. But no biologic has so far . Injections are easy to do, but you will need to experiment with placement in tummy or legs for least painful area. Not saying the injections are painful, but I find thinner skin area seems to hurt more. I have no side effects from the injections.

This is way better than remicade where I felt at times in a fog for the rest of the day. No such fog with humira.

Good luck
Posted 3/2/2017 5:38 PM (GMT 0)
I want to preface with this. I know many patients do great with humira and find remission. I don't want my story to overshadow the good humira has done for others.

My previous GI doc had me switch to humira summer of 2014 because of IV access issues for remicade. I found the injections to burn quite a bit and at the end of 3 months, I was starting to get a large hive at the injection site and my UC cramps were breaking through. My main problem with humira was that I developed neuropathy in my heels after the loading dose injections. I saw many physicians during those 3 months and finally begged my GI doc to let me stop humira and go back on remicade. After getting a referral for pain management, she totally validated the dx and said it was either from humira directly or it was an autoimmune trigger. What really angers me if I dwell on it is I wanted simponi but my insurance required that I fail humira first. I'm now on several meds for the neuropathy but not pain free.
Posted 3/6/2017 2:03 PM (GMT 0)
I started in mid-Dec for UC. The shot is quick and easy, stings a bit but for less than a minute. Just had a scope last week, colon looks much better with the exception of some mild inflammation in the cecum. I will be going to weekly injections as soon as insurance approves. I feel 100% better and have not had any side effects.
Posted 3/7/2017 3:55 AM (GMT 0)
I was on it for 9 months. It healed my fistula and gave me some symptom free months. I eventually started having aches, nerve pains and stiff legs among other things that were attributed to it so i had to stop. I would still recommend it though because It did such a great job with the crohns and my symptoms did go away with in about two months of stopping. I found injecting into the stomach was best for me. I personally wish i had had the syringes instead of the pens because they allow more control over the speed of injection.
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