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Left side pain and still haven't seen consultant

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Crohn's Disease
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Posted 3/22/2017 8:59 PM (GMT 0)
I all, I had symptoms since September and suffered my first flare in December 17. Its gone nearly 4 months and still haven't even got an appt to see the consultant. I've been chasing the nurse about this and keep getting excuse after excuse. I've ended up calling the gp to refer me so waiting to hear back. I'm now getting pain in the left side of abdominal and a constant dull ache all over that seem to push down on my bladder. For some reasons its better wen I go for a wee. I'm scared my crohns is getting worse. They said I mite need another colonoscopy and in the meantime its getting worse. I've pretty much been diagnosed and had a colprotectin level of greater than 6000. Why is there no urgency for people who suffer with crohns? Has anyone else experienced this amount of time just to see a consultant. I've gone back to the start with needling it all done again. Obviously crohns isn't urgent until you end up with severe crohns and in hospital. I'm bow feeling so depressed and not sure if I can hope with this illness. Feeling angry, frustrated and emotional.
Posted 3/22/2017 11:26 PM (GMT 0)
Hi Hedgehogs, I'm so sorry you are going through this. Yes sometimes it can be tough. It's especially hard if you are a new patient. Usually if your GP thinks it's serious enough they can contact the other physician and get you in sooner or give you another choice of doctors. It sounds though like you have already been to this office before? Did they do the colonoscopy? In my experiences, I have had some doctors of various specialties that were really really hard to get appointments with no matter how bad you were while others that would accommodate at a moments notice. You should be able to ask to speak to your doctor who should be able to give you a better idea as to what to do. My GI is usually able to fit me in with in the week and is always available to answer questions or concerns but it took me a really long time to find this GI. Hang in there! It does get better even though it seems really bad right now. the GI I switched to has been really easy to work with despite the difficult situation I have been in with the crohns He had great communication with my other doctors and that has lessened my stress, gotten me on the right medications and put the crohns into remission. It took a long time to get to this point though. Stick with it, I hope your GP can give you more guidance and direction to another GI if needed.
Posted 3/23/2017 12:46 AM (GMT 0)
The waiting game is a terrible thing to have to endure. Especially, when you have enough on your plate. I would agree that you might try your family Doctor again, and see if he can push to get you in to see someone.

In our Hospitals, they have an on call GI for emergencies. You might try that as well. One way or anther, it sounds like you need to get in to see someone asap.

Do you have a family member that can advocate for you? That might do the trick as well. We often don't want to be the bad guy for ourselves, but a friend or family member can be alot more demanding and get away with it on your behalf.

Hope you get things resolved soon.
Posted 3/23/2017 12:26 PM (GMT 0)
Hi guys, thanks for replying. My brother is going to call my gp as I feel I'm being a burden. I've already phoned my gp a couple of times. My brother is very demanding. The nurse said the consultant wants to see me asap yet I haven't even got an appt. It's ridiculous. Once I get to see him I'll he making a complaint about the nurse as she told me she referred me weeks ago. Not good enough. I'm now experiencing bleeding not in my stools though. Hopefully I'll have an appt in the next few weeks otherwise ull go a&e if it gets worse. At least I'll get a colonoscopy straight away.
Posted 3/23/2017 1:13 PM (GMT 0)
I hope your brother gets somewhere, Hedgehog: sometimes all it takes is an angry relative. As for IBD nurses I can't say I've been impressed by most of the ones I've had. They have way too much of a tendency to fob you off and trivialise symptoms. I get that they must deal with a certain % of timewasting patients (of which I don't think you're one by the way), but they seem to make little to no distinction between the timewasters and the people with genuine problems.

When you say bleeding but not in your stools, where is it then?
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