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Mouth Sores & Colchicine

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Crohn's Disease
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Posted 4/21/2014 12:29 PM (GMT 0)
I would like to know if anyone is taking colchicine for the mouth sores that sometimes come with Crohn's? I have been prescribed this (it's mainly used for gout!!) . . . . I get terrible and constant mouth sores, but I am leery about taking this medication . . . the side effects sound really serious.

Does anyone have any experience with this? Or, do you have a different solution to Crohn's mouth sores?
Posted 4/21/2014 9:21 PM (GMT 0)
I'm not familiar with the medication but wanted to respond in order to keep it bumped up in the feed so that others may see it. It may be an off-label use, but it would be interesting to know if there are good responses with it. I share your apprehension about side effects as we all have to weigh our options.

There's a site called askapatient.com or .org--can't remember--that may have some information that patients may have posted on this medication. Sorry I can't help you otherwise.
Posted 4/22/2014 1:30 AM (GMT 0)
Thanks LaSanne . . . . I would really like to know if I am the only Crohn's patient who has these terrible mouth sores, and the Colchicine is one of the "new" therapies for this . . .but (like many of our meds) it was developed for something totally different (in this case -- gout!) . . . Would love to have ANYONE respond who has taken this medication and what was the result??
Posted 4/22/2014 6:41 PM (GMT 0)
I don't think mouth sores are that uncommon with CD. The disease can present from mouth to anus. I have problems with chronic nasal inflammation and think it's related. For me, I've only had oral problems with some of the drugs during a bad flare. Not fun.
Posted 4/26/2017 4:35 PM (GMT 0)
I've recently been prescribed Colchicine (Colcrys) for severe mouth ulcers most probably related to my Ulcerative colitis, which itself became apparent after quitting smoking. Previous efforts to quit smoking had been quickly followed by constant mouth ulcers, lasting for months until I resumed smoking. Recently (since UC diagnosis) continuous severe mouth ulcers were only cleared by high dose prednisone, returning each time I tapered off. I'm tapering off pred right now while taking Colchicine. Mild ulcers still, but tolerable. Will update when I'm fully off pred for a while. Feeling very positive about the Colchicine though. If this stuff works I'll want the world to know.
Posted 4/26/2017 8:12 PM (GMT 0)
I have a lot of reoccuring mouth ulcers. My pcp and old gi dr just said all people get mouth sores. Ive even has 3 abscesses in my mouth. One in my tongue, one on the soft pallet, and one under tongue. I currently have an abscess forming on inside of my cheek.
Posted 4/27/2017 2:44 AM (GMT 0)
Oh my.....

I get these little "ulcers" in my mouth. I put salt and lemon juice on them and they go away. Burns like the Dickens but it seems to work. I have to do it multiple times a day for 4 or 5 days minimum. If they are bad I clean the ulcers with hydrogen peroxide a couple of times a day plus the lemon/salt. Without the salt and lemon juice they get big, go deep and take weeeeeks to heal.

I haven't had as many since I started Remicade. Ill be watching this just in case....

Clo
Posted 4/29/2017 10:43 AM (GMT 0)
Ive never used this medication but hope this helps.

I've got these little buggers for long as i can remember. I just used to just put up with them but a while ago my GP suggested a mouth wash called Savacol by Colgate and it helped to a certain point it just made the stinging cool down so it was much easier to eat (cause mine sting when i eat)

At the start of 2016 i got a really bad flare and went on a very bland diet. I cut out alot of food, dairy, gluten much solids and it was just for a while but for that period i noticed i didn't get sores.

So i tried to figure out why?!! I experimented and i found my culprit.

GLUTEN.

I noticed everytime i would have bread, pizza, muffin. Basically anything high in gluten these little sores would appear a day or two later. I cut them out and i went a month without gluten and no sores.

For me its not crohns that gives me sores its gluten! Cause even when i was in remission they would appear, i was flaring really bad at the start of 2016 and didnt get them!

If you're gluten free and still get them maybe it is your crohns maybe its something in your diet.

Alot of things can trigger mouth sores
Sodium lauryl sulfate (SLS) in toothpaste can cause sores
Many citrus fruits are highly acidic and can cause sores
Poor dental hygiene can cause sores
And yes gluten can cause mouth sores.
mine was gluten, try it and see how you go.

Hope this helps.
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