Posted 9/11/2016 2:44 AM (GMT 0)
Hi. I'm new to the forum and decided to register and reach out to people knowledgeable of IBD. Starting about a year ago, I always feel sick and am extremely fatigued. There is always a burning feeling in my small intestines and they often feel very bloated and the pressure causes a sharp pain in a few spots. No cramping due to peristalsis though. I have a fever that comes and goes; and simply walking for about 5 minutes causes a fever. I've had a CT scan, MRI, colonoscopy, upper endoscopy. Docs don't know what's wrong. My lower abdomen bothers me the most. CT scan appears to show mesenteric edema (swelling) and comb sign of intestinal arcades, but not "misty mesentery" associated with hypertrophy such as with ischemia, etc. The swelling causes displacement and matting of the intestines against my abdominal wall. The area of the swelling feels very firm and pressing on it often helps relieve the pressure/bloating feeling in my intestines. It feels like there's a stricture in my small intestines, but the gastroenterologist says the radiologist would have noted that from the CT scan. However, the GI doc has contradicted himself and said a CT scan it's not a perfect test and that the small intestines are all always moving around...a CT scan only captures a moment in time and a stricture would not necessarily be detected. I've been tested for celiac, TB, and many other things. My white blood cell count is a little high but other results seem to be fine.
That's a basic summary. This is a final desperate attempt to figure out what's wrong with me. I've been sick for a little over a year and can't do this anymore. I'm done.