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Crohn's Disease
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Posted 8/7/2017 4:55 AM (GMT 0)
I've noticed that since my Crohns was active (formerly a UC patient), that I have to worry about having a bathroom nearby. Unless, I have a complete/normal bowel movement, I get REALLY nervous and shy away from using public transportation. Instead, I opt to use my car all the time.

Since I've been in remission w/ the aide of Humira and 6mp, its gotten a little better but I still have a fear of crapping my pants (sorry for the visual)

What is it about Crohns that causes this? Its almost as if the nerves inside the bowel are overly stimulated.
Posted 8/7/2017 4:09 PM (GMT 0)
I have heard of that happening. maybe you need an antispasmodic or something? Have you mentioned it to your doctor?
Posted 8/7/2017 10:56 PM (GMT 0)
I have this issue. I believe its actually common with Crohns. Dont feel alone. I always drive myself and always know first, where the bathroom is if going out. Never took anything for it as I think the Humira and all should help, sometimes the food you eat will make this worse. Try changing your diet slightly and I'm sure you'll notice a difference, I have.
Posted 8/7/2017 11:37 PM (GMT 0)
I'm in remission according to my last scope and I still get like this. I don't know if it's the IBS I have on top of crohns or the fact that I had proctitis for so long that my sphincter is basically fried (my CRS' words). One of my biggest fears starting a new job last year was that there were limited restrooms on the way. I've never not made it there, but I have just made it on a couple of occasions.
Posted 8/8/2017 5:52 AM (GMT 0)
My doctor have prescribed me something (I forget what it was called), but its basically something to keep me from having a bm.

Also what kind of diet do you recommend changing to help the situation? What foods have you eliminated and what foods have you stayed w/? Thanks
Posted 8/8/2017 8:10 PM (GMT 0)
Stay away from dairy, sugar, corn, tomatoes, red meat, all BREADS, no coffee.
Posted 8/11/2017 11:49 PM (GMT 0)
thanks
Posted 8/26/2017 5:30 AM (GMT 0)
I have this problem too.

I ALWAYS look for where the bathroom is. And at my work I also know the more remote bathrooms where it might be more private in case there are embarrassing noises/smells.

And, when I notice "leaking" / my sphincter is "tired" my GI told me to attribute to IBS more than Crohn's because my CD has been pretty contained to my Ileum so we have a different action plan for those issues. It's the worst.

Coffee, diet cola, sugar, tomatoes - all affect it for me. Haven't seen it with bread, but haven't really tried cutting that out.

Some years ago I also decided I was tired of wearing slightly stained underwear - so I buy a fresh, inexpensive set every 6-8 months or so. Makes a huge difference to how I feel so thought I'd share. Hope it's not TMI.

Good luck.
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