Just had an accident, urgh

I was lying on the sofa, twittering away tweetily on Twitter, when an urge struck me out of the blue. I tried desperately to hold it in, but it was as as futile as trying to persuade a Brexiter that Brexit is a bad idea. I had to get up, clean myself in the shower, bung my newly washed jeans in the washing machine for 30 minutes at 30C (no idea if that's enough, but didn't want to do a whole cycle for one pair of jeans), and rinse the stain off the sofa.

I've had several near misses recently but this is the first proper accident I've had in I can't remember how long. I just had an Entyvio infusion last week, but it doesn't seem to have made any difference to the urgency.

I suspect I'm flaring again; something auto-immuney is going on at any rate. CRP is up to 24, from a baseline of 8 over the last three years. Been getting random hip/lower back pains; oh, and my creatinine is slightly high. Also been having regular night sweats. So yeah. Dunno whether to leave it or get in touch with the IBD nurse and ask for an appointment. The brain fog is real too :-/

Sorry to hear that. I used to joke with a friend that I had two kinds of bowel movements - emergencies and accidents. I've been lucky on the accidents front though. It sucks. This disease just sucks. I can't even give you any good advice - try to have a sense of humor about crapping your pants??? Sorry...

Thanks folks. The jeans needed an extra spin cycle but otherwise came out fine - I'm glad 'cos those are my good jeans.

@Clo - I had accidents with my ileostomy; usually with leaks. One horrendous night I left the bag too long because I couldn't be bothered getting up - it was full to bursting - and the wafer popped off and the contents spilled all over me and my bed. That was not fun.

@iPoop - I tend to go in the evenings and in the evenings I'm usually at home. So that is one small mercy.

I think I will try to make an appointment with my GI - it must have been about six months since I last saw him. I am dreading the prospect of another flex sig though, since the last two were so awful - even the one with twilight sedation. They are worse than colonoscopies used to be. That doesn't make sense and I can't explain it, but they are five minutes (feels like longer) of butt hurt. Literally.

That's the worst. I am so sorry. Stevo made me laugh though, emergencies or accidents... I know that feeling. I really hope your GI can offer you some options that give you 100% health. You have been fighting for so long, you really do deserve a long, long (forever!) period of great health.

NCOT,

Thinking of you and hoping things are going better.

I am so glad your jeans came clean! I hate it when I have to throw away clothes! I have these fistula...and they are sorta closed up...but they are so weird. They don't hurt and suddenly they will open up. The doctors say they have a trickle of output... Nope!!! Mine shoot like a fire hose under a tent....lol..they will even blow off the taped on gauze dressing. So I feel for you.

Embarrassed=walking thru a mall or department store and have your fistula open up. Your shirt looks like an alien is trying to escape and OMG...the smell!!! And I don't help matters because usually I get the giggles, my eyes are huge and darting around looking for escape routes, and I am trotting towards a safe place laughing away.... Yep, true embarrassment.

Then we get to the...do I wanna ruin my cars interior by getting in point and the fun really begins...

Crohns is an adventure...and it does teach you humility, gratitude and a sense of humor!

I have gotta train my fistula to wait til we are at home!

Hang in there....

(Hope I made you chuckle)

Clo

Oh boy!! That sounds like a mess, but at least you were at home! Last week, I was rushing into the clinic for my first appointment with a mental health therapist (to help me through my tough time with my disease and life changes right now). As I was waddling in (to try to hold it), the urge just kept getting more and more... got into the building... doing the shuffle walk, and out it came... I had no control.... shuffled into the bathroom.

I was about 20 minutes from an appointment that ends up being scheduled two weeks out, so I threw out the underwear, cleaned up the jeans best I could, and went to the appointment completely uncomfortable. I didn't have a choice, but to go through it at that point. Probably could have rescheduled, but the need for some counselling outweighed clean clothes at that point....especially after that.

I thought I was the only one who dreaded Flex Sig's! My GI said it would be quick and easy. Turns out the 5 mins of 'butt hurt' as you say was far more uncomfortable than I could have imagined. It felt like forever. I have not had one since.

Anyway, I just wanted to let you know that as you may be aware I am for the most part in some sort of semi-remission and have been so for close to three years this October I guess. BUT... a few months ago I finished up a lunch meeting for work and got into my car to leave. Then that unmistakable 'feeling' hit literally out of the blue right there in the parking lot. I was not prepared and quickly scanned around for a washroom but by the time I even located a place that might have one accessible it was to late. Whamo. Right there in the car. And it was a bad one. Lucky I was by myself. To make matters worse home was a one hour+ drive away and I had absolutely nothing to change into and nothing to clean up with except for two small old rags that I use to clean my car from time to time that were in the back seat. I drove the hour+ home naked (without pants or underwear) siting on one of the small rags as best I could... was a horrible experience. The underwear ended up on the side of a road, but I could not throw out my pants because home is in an apartment and I had to still get inside and up the elevator. The smell was unbearable driving home and it was winter so I could not roll down the windows to far. Once I arrived I had to put my disgusting soiled pants back on while thinking how am I going to get from parking to the elevator and up to my apartment without running into anyone - the walk of shame. By some miracle I had the hallways and elevator to myself, but when I finally got in into the shower I totally broke down...

I can laugh about it now at least. But still. The experience effected me. I guess as mojo said below - 'CD the disease that keeps on giving'

I think mine was more of an IBS food reaction thing versus the start of a flare. I was wondering if like me, maybe food could be the culprit behind some of your symptoms recently? I seem to stay in this semi-remission only if I eat safe foods (which are expanding in variety now) but even so it can be a little iffy. Food seems to rule how my bowel works these days. I notice minor inflammation if I wander to far diet wise and I can get rid of it simply by going back to my 100% safe food list for a few days. It sucks to limit one's diet but I seem to manage well with WOO, Diet and Imuran together for whatever reason. I just wanted to suggest maybe a temporary diet modification would help until you can get back in to the doctors and find out what is going on. Everyone is so different thought and that's the part that I'm sure drives us all nutz.

Hope you feel better and find answers soon.

that sucks M - so sorry for your struggles that can't seem to leave you for long - hope things improve soon !

BUT ..... thanks for the hilarious stories you guys - holy poop those were some good one's - LOL HAHAHA !!!!!