Hi everyone,
It's been a while for me finding the need to seek out help or advice, cause I really have been feeling pretty decent for several months. That was until about a month ago. First it started out with bleeding, while I'm taking my Salofalk (which has never happened before) about a week after this happened, I started feeling unwell (which has also never happened when I've been bleeding? usually I have no other symptoms) Pains low right side, and sometimes left but higher up...my hair is falling out, no energy except for a couple days here and there, lots of blood and mucus, not much for appetite...hurts worse when I do eat....just overall unwell. I did start to take my suppositories again...it's been forever since I've taken those, but I knew that's what the Dr would reccommend doing. My box was almost empty, no refills, not feeling much better, so I phoned the office to let them know what was going on, eventually was able to leave a message last tuesday (28th) I had to greatly space out the supp. so that I wouldn't run out waiting. I finally called back again on Tuesday left yet another message, and did hear back Wed. morning...told her my symptoms, and that I should probably get more refills on the bum pills...she would talk to the dr. and call me back that day. I finally called back this afternoon, left msg...she called back to say that she'll call in refills, and that Dr. still wants to see me on 19th (appt from 6 mths ago) I'm flaring and he can't do tests since I'm on my meds!? A little frustrated by that since last yr he took me off of them...I started to bleed pretty quickly, and when I went in to see him he said he didn't want to put me through tests, even when it was very obvious that something was going on. I should mention that the only time he has scoped me was when my bleeding had been controlled with drugs...I wonder why he didn't see a whole lot!!!! It seems like every time I talk to him he has contradicted what he told me the last time! Anyway, I was willing to wait and talk about this with him on the 19th...long enough to wait considering how I've been. Now here's the kicker: she calls back to tell me that he's booked at the hospital that day now so I won't be able to see him after all, can I come in the next 2 days!? NO I can't!!! the only other day off I had was Monday, but of course he's at the hospital that day too!!! So now I have to call her back tomorrow, to book for the following week...if that'll even work out. I was so frustrated when I got off the phone I started to cry, probably because I'm sick of feeling like this, and now I feel like they don't give a you know what!
Is it just me feeling crappy, and frustrated, or does this seem a little unreasonable to you?
Sorry it's so long, but thanks for letting me gets this out...grrrrr 
Paula