no medication

 

I was wondering if there was anyone else around that had Crohns but was medication FREE.

I was Dx over 26 years ago and for the past 16 years have been medication free. I was just wondering if I was the only one that was able to control their chrons with diet and watching there stress.

Julie,
I had a long span of no meds -- almost 20 years, then I had a major flare and have had to go back on meds. I've wondered since then if I had been on some type of maintainence if I would have had another flare. Any way , I'm currently on sulfasalzine & 6 mp to manage CD.

Good luck and I hope you can continue to stay med free.

I once had a 20 year remission without drugs. Would I do it again, NO WAY!! My remission ended with an emergency resection. All the while during my remission I paid no attention to my Crohns, but it didn't forget about me, it was ticking away doing its damage the whole time. I think if I would of been on maintenance meds I wouldn't have gotten so bad. JMHO!

My daughter is med free since she became an adult and decided no more. Trouble is she is not even under doctors care for her Crohn's. Off meds for 8 years. I know that when she does flare, it's going to be bad. She does have some signs of disease activity. Has accidents and has to run to the restroom. Has bloating and pain but she is still rebellious. I have made her promise to see a doctor as soon as she gets insurance for herself.

She has a six year old daughter and is concerned of crohn's because it seems to run in the family. My granddaughter is 6 and only weighs 32 lbs. Teeny-tiny thing. Her pediatrician is running blood tests on her today just to be on the safe side.

its nice to hear that i am not the only one med. free..
I should add i don't go the Dr. for my crohns. I tryed the other day but i just about told the DR. off when he said that he wanted to test to make sure i had cronh's ... My comment to him was if i dont this practice would be SO screwed. Most of my youner life from age 7-18 was spent in the hospital doing thousands of tests.
So after that appoitment i told the Dr. that i really think that i knew more about crohns then he did and i was not going to be his ginie pig to try all his new medications on.
I actaully went to see him to have my blood levels checks..
No thanks for know on i will go to my prymary Dr. he is willing to work with me and get my B12 and iron level back to where they should be