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Posted 10/10/2007 8:21 PM (GMT 0)

Hello folks- I'm brand new to this forum and excited to find you folks!  I'm 52 and was just diagnosed late Aug with Crohn's - 5 years after being dx with celiac disease.  Was also dx type II diabetic last winter.  Fortunately, the Crohn's is in a moderate state w/o any obstructions.  I have mixed feelings right now.  The Crohn's explains why I never really got well after eating gluten-free for all those years so there is hope for the future.  The diabetes is mild so no meds needed and hoping it will stay that way.  But I'm a little overwhelmed too.  I can see that I could be a whole lot sicker than I am but from what I'm reading about Crohn's, it could scare one half to death thinking of the possibilities. But I'm a survivor and do not sit down and feel sorry for myself much - well, sometimes. 

Actually, I figured out this week that it's time for me to slow down and get healthy and I've informed several people that I will not be taking on any new commitments over the next several months.  A major step for me and one that seems to be well supported so far.  I call myself schoolgirl because I've been a "professional student" for many many years and finally finished with an MBA just last year. 

I read the OT thread about the old-man driving - boy can I relate!

Posted 10/10/2007 8:44 PM (GMT 0)
Welcome! You might want to check out a diet designed for patients with Crohn's and ulcerative colitis called the Specific Carbohydraten Diet (SCD). It is based upon the original Celiac diet...which is more than gluten-free...it is grain-free.

The author of the book, "Breaking the Vicious Cycle," argued the original celiac diet, grain-free, is more effective than the gluten-free diet.

Perhaps the SCD can help you with both celiac's and Crohn's. There are a lot of testimonials on Amazon.com. It might or might not work, but at least it is a healthy diet. And we are big believers in the homemade yogurt part of the diet.

www.breakingtheviciouscycle.info

 

Posted 10/10/2007 9:29 PM (GMT 0)
Welcome schoolgirl, I'm new to these forums as well. Gool luck and stay well.
Posted 10/10/2007 10:18 PM (GMT 0)
welcome . schoolgirl and erik45.
Posted 10/10/2007 11:47 PM (GMT 0)
I've seen references to the special carb diet and had looked briefly at the link you provided.  But at second glance, it looks worth getting the book in order to see the full picture.

Thanks for the suggestion.  I see the GI tomorrow for follow up and will see how many of my other questions she answers - or if it just sets off more questions LOL.

Posted 10/11/2007 2:18 AM (GMT 0)
Welcome to HealingWell! This is a great site for support & info, I'm glad you found us, but sorry you needed too.
Oh well.

Sincerely,
Matthew
Posted 10/11/2007 2:26 AM (GMT 0)
Welcome,we are glade to have you.
Posted 10/11/2007 2:35 AM (GMT 0)
Welcome. It seems you have done a lot of reading, which is wonderful. Just don't scare yourself. Everything you read is a possibility, not a probablity. There are some people here who have had every worse case scenario happen to them, there are others who have very mild cases. Most of us fall some where in the middle. The best thing you can do for yourself is get educated and you are already doing that. Please ask any questions you have. We talk about everything, after all CD is a disease that involves all the wonderful bodily functions that most toddlers are facinated by, so I guess we are just little kids at heart. I hope you get some answers at your doctors appointment, but if you leave and think of more questions, you know where to come.
Posted 10/11/2007 3:21 AM (GMT 0)
Just like to add my welcome. Hope to see you often.
Posted 10/11/2007 10:34 AM (GMT 0)
Hi Schoolgirl and Welcome, You are with good friends here.
Posted 10/11/2007 2:53 PM (GMT 0)
Welcome schoolgirl,it's good to meet you.Take care.
Posted 10/11/2007 4:06 PM (GMT 0)
yeah  

Welcome to the family! Please ask any questions and respond to questions posted too. We all work together to get the answers and support we need. Best wishes!

 

Posted 10/11/2007 7:58 PM (GMT 0)
Hi and welcome I also am over 50 too , oh for the good old days. I have found much needed info and help here the people are very caring and such a comfort .lol gail
Posted 10/11/2007 11:20 PM (GMT 0)
Thanks for all the warm welcomes! I can tell this is a great bunch of people.

Saw the GI today. She seems to think I'm very "special" having celiac and crohn's I really like this doc and I think we'll work well together with my primary care who is also an internist. My big challenge now is to convince my 2 boys to get tested. The 32 year old started having problems a couple of years ago while the 26 year old has had problems since high school. They are both in denial and avoid discussing it with me. Now that I've talked with the GI, I'm going to get the family to sit down and discuss the whole thing thoroughly. It's one thing to have celiac - crohn's is a whole other matter.

Anyway, I feel good after today's visit. Lots of challenges ahead for sure, but there is still that glimmer of hope!
Posted 10/12/2007 7:19 AM (GMT 0)
Welcome....this is a great "family" that will support you every step of the way. Glad you found us. Come visit us often.
Mary
Posted 10/12/2007 7:41 AM (GMT 0)

Welcome aboard as I am sure you are already aware you will find lots of great people here that are fulll of great advice and you can lean on a bit when you are not feeling strong.

Stay well

Jumper

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