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Crohn's Disease
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Posted 10/10/2007 11:17 PM (GMT 0)
Any of you out there with CD Asian? I am an Asian male and curious how you are coping with the disease, especially in terms of diet. Based on Internet research and conversations with my GI doctor, CD in Asians is very rare and almost non-existent.

 

Posted 10/11/2007 3:47 AM (GMT 0)
my husband is the one with crohns and he is half japanese and half white. im not sure how that qualifies.....he is adopted so we dont have any of his medical history or his biological family's either.

 

Posted 10/11/2007 4:24 AM (GMT 0)
I know there are a couple people on here that post from Asian countries but I don't know if they are asians by ethnicity or by citizenship or just ex-pats.
Posted 10/11/2007 4:40 AM (GMT 0)
From what I've heard IBD is becomming more prevalant among asians because of their traditional diet has been slowly changing towards becomming like our diets ("western diet")...I know that there are asians born in western society that get IBD and IBS as well.


:)
Posted 10/11/2007 5:06 AM (GMT 0)
Some good points. I was born in the US and my diet has been, for the most part, 50/50 Asian and Western/US. Basically, when at home, I eat Asian good (Korean and Chinese) and when eating out I eat (well, used to) burgers, steaks, pizza, italian, etc. In any case, just thought it might be helpful (from an ethnic standpoint) to discuss coping with CD (given different ethnicities have different types of diets).

Thanks!

Posted 10/11/2007 11:03 AM (GMT 0)
I am in India, and I suffer from CD. I was in USA for my masters, operated for fistula and CD was diagnosed later on in India.
Posted 10/11/2007 11:24 AM (GMT 0)
I have a friend with UC that is Korean. She moved to South Africa as a teen and then to the USA as an adult.
Posted 10/11/2007 10:33 PM (GMT 0)
I'm Caucasian but I lived in Taiwan for nearly 25 years. I was diagnosed there with Crohn's disease. At that time (1989), I was the first case that hospital had ever seen (and it was a large hospital). After my bowel resection, the hospital even kept my ileum in a pickle jar to show the medical students.

Since then, I've learned that in the city where I lived, there are now two other known cases, both ethnic Taiwanese, both female. Crohn's disease was once extremely rare in Caucasians, and unheard of in Asians, but this is gradually changing. The disease is becoming more prevalent worldwide, and nobody knows why.

Diet could possibly have something to do with it. Fresh milk, which is one possible cause due to the MAP virus, was nonexistent when I first went to Taiwan (powdered milk was the only kind available, and it doesn't contain MAP). Now fresh milk is common in Taiwan. But other aspects of the Taiwanese diet have changed too, so it's hard to say. A lot more junkfood now.
Posted 10/11/2007 11:32 PM (GMT 0)
Thanks for the reply. I would imagine if we knew the cause of CD then a cure would be more viable. In any case, I am diagnosed with CD and regardless of ethnicity or background, I just need to be more careful with my diet, eat my meds and pray diligently that a cure is in the near future (or, at a minimum, better and/or effective meds without all the nasty side effects).

Thanks!

Posted 10/12/2007 12:01 AM (GMT 0)

* I am Asian (Chinese) and I was diagnosed of CD 5 years after I moved to the U.S.

* Crohn's Disease is extremely in China.

* After I moved to the U.S., I ate a lot of foods with refined sugar and milk related products, which are still rare in China.

Posted 10/12/2007 10:34 PM (GMT 0)
We've indian(south asia) heritage and during my investigations and
talking to the families and Doctors there, it was clear that CD has been
relatively a new disease in India. It was unheard of few years back.
We've no known family members with this disease.

I met one person with south asian background during the
last CCFA Guts&Glory Walk event who had indian roots, born in the UK and moved to
the US at the age of 9 then got Dxed with Crohn's at 12(25 years back).
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Posted 10/14/2007 10:42 PM (GMT 0)
I'm 1/2 Filipino and 1/2 Austrian (got my crohn's from my Austrian side--my Papa and Grandfather both have it--only I didn't know cause my Opa is dead and my Papa just was diagnosed with it recently and I don't really speak with him.  I heard about it from my Onkel who I DO speak with)

Diet.  I don't know if diet had anything to do with it.  I actually ate pretty well prior to this (fresh fruits and veggies, whole grains etc) which is one of the things my family here in the US razzes me about because I was always the "picky" eater and I'm the one that got sick.  Only thing is that I TRULY MISS is eating asian foods:  filipino, thai, chinese, some vietnamese and japanese because alot of their dishes is FRIED.  =0(

I have heard that it is true that Asians don't really get it as much but I don't know if it is because their diet is different OR if their issues aren't reported like in other countries.

Good luck to you.... 

Take care

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