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Flare ups while on drugs

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Crohn's Disease
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Posted 10/26/2007 10:25 PM (GMT 0)
Me again, sorry


Having read a fair few posts it seems to me that even being on drugs doesn't stop flair ups.  I've also read that by being in denial and not taking the drugs can cause worse.

Therefore is it that you still get flare ups whilst on drugs but they just won't be as bad as if you didn't take them?

I ask because after my last round of major flare 6 years ago I was on Prednisone but got off them and took nothing till now being in total remission.  Now I'm on Budesinide and wanted to step down them till I could be in remission again for another joyous 6 years plus but am being asked to decide on which drugs to take as I would prefer to take none.

Thanks

Posted 10/26/2007 10:34 PM (GMT 0)

being on CD meds buys you time and can induce remission. i had an 18 month remission being on remicade but just recently flared. but it definitely wasnt as bad as when i was first d'xed. i guess what you hope for is that the meds keep you from getting too sick but sometimes they dont work. then you have to try another one. imho i dont think that there is any drug out there that is going to be foolproof, its up to our bodies. but as for me im sticking with the meds in hopes that they do get me back to being in remission.

i do hope that you go another 6 years, heck even more without symptoms!

bunny


Posted 10/26/2007 10:43 PM (GMT 0)
Thanks a lot :) and all the very best to you too!
Posted 10/27/2007 2:35 AM (GMT 0)
A flare while on maintenance drugs can also be the result of taking any kind of antibiotics. Sometimes the flare doesn't show up until 2 weeks after you stop the antibiotic. My suggestion is to take probiotics and eat that yogurt or drink yogurt smoothies EVERY day to keep the monkeys away!
Posted 10/27/2007 4:38 AM (GMT 0)

Well, I've been on the same drugs, 8/day for almost 3 years, and out of no where started bleeding on Aug.11, and haven't quit bleeding yet...I'd like to know what the heck is up with that!?  I haven't taken any antibiotics, or any new drug for that matter confused   I'm sure that if I weren't taking anything at all that I'd be much worse off though (always gotta look on the brighter side :-) ) 

Good luck with your decision...that won't be easy to make...whatever it is though...I hope you stay well!

Paula

Posted 10/27/2007 6:23 AM (GMT 0)

Sometimes the drug can die out and our body gets use to it and then the flares happen.
That's what happened to me it seems. I was on pentasa and entocort for a yr and a bit and was great, til 6 weeks ago.
It's not enough for me anymore the doc says and I need stronger stuff :(

Everyone is diff tho, but I know what you mean by wondering if the pills make it worse.  It seems it at times, like the side effects it can give off or your flare worse. Recently i've just been hoping for the best and taking each day as it comes. Best of luck to you :)

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