chest pain and neck swelling

Every time I have a Remicade infusion the next day my chest and neck hurt to touch.  There is also swelling in these areas.  Has anyone else had this problem?  My abdmomen also cramps a lot and I get very fatigued for may days after.  I am in a small town and have a Rheumatologist taking care of my meds she has no answers for me.... HELP!!

You go Judy! How is it that we, the patient, are more knowledgeable many times on our meds than the docs are. With the internet, it does make it much easier for us to "study" about what is being put into our bodies.

I might also add that your local pharmacist is also a good contact whenever you have any questions about a med. Though they are not a doctor that can tell you what to take, or prescribe any further meds, they can certainly recommend ideas to you.

Thanks for the input. It does seem that the patient always knows more about the disease and meds than the MD does. I do get medicated before hand. I am the only one in the facility that does. And trust me I have heard a dozen times that I don't need to be but all the research that I have done stated that it was a good idea. I think that part of the problem is that I work at the hospital and you know that when you work there doctors think that you are thinking about it to much or making more out of it than what it is. I have had many tell me for years that it was just IBD and that everyone has it so just take a fiber supplement to help . Sounds like it is the same story everywhere. The doctors are leaving it up to the patient more and more. Thanks for the support it is good to finally be able to talk to people who feel as I do and who can shed some light on my problems!!!

Thanks I think that I may have to have that tested. I had that done a few weeks before the infusions started. I did not know about the 4 week test. Thanks!!!