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Its Official Im on the next Tier!

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Crohn's Disease
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Posted 11/13/2007 9:47 PM (GMT 0)
So after being diagnosed with Crohns disease for 13 years I have finally ascended the first tier drugs and as of today have started 6MP.

I am actually excited about this...After knowing about 6 mp for over 6 years and doin a lot of reading I am confident that this will carry me hopefully into a remmission of 5 plus years!

I have always been able to hold my Crohns at bay with Asacol, Flagyl, and Entocort/prednisone. However this time after 6 weeks of no change with this regime...My doc and I have decided to go to the next tier.

Just knowing that there is a very high probabiltiy that once the meds kick in in about 3 months I will go into remmission for a substantial amount of time is so exciting...!

Wish me luck!

Posted 11/13/2007 9:53 PM (GMT 0)
I've been on 6mp for almost 3 years now with great success. Good luck to you!
Posted 11/13/2007 9:59 PM (GMT 0)
I used to take 6mp myself and am thinking of starting it again. Just one tip. I found it upset my stomach a little, but I started taking it at night and that put an end to any side effects. Good Luck!
Posted 11/13/2007 10:13 PM (GMT 0)
Hey Nanners...

When you say great success do you mean no symptoms at all in three years?

Posted 11/13/2007 10:14 PM (GMT 0)
Im sorry I meant Hlc120 tongue
Posted 11/13/2007 10:21 PM (GMT 0)
I'm jealous! It took you 13 years to get there!!!!! I wish it took me 13 years....I had to resort to it after only a year!
Posted 11/13/2007 10:30 PM (GMT 0)
Yeah 13 years...I feel that that is a great run...and Im ready to move forward with a treatment that will help me achieve the life that I am acustomed to living...and that is with no symptoms! LOL
Posted 11/13/2007 10:39 PM (GMT 0)
Best Wishes and glad you have such a good prospective on your condition. Let us know how things go .lol gail
Posted 11/13/2007 11:16 PM (GMT 0)
Best of luck, Doc! Welcome to the "First Class" as I call it.

~Sway
Posted 11/13/2007 11:22 PM (GMT 0)
Thanks Sway appreciate it! I guess I am moving to the grown ups table! LOL
Posted 11/13/2007 11:25 PM (GMT 0)
*LOL* Too funny, Doc! And how appropriate for the up-coming Thanksgiving holiday! :) I hope 6MP brings you a long remission. Are they altering your current meds? Or are you still going to be on them for a while? I always enjoy the "cocktail" phase of figuring out which ones need to stay, and which ones I can say "Sayonara" to.
Posted 11/13/2007 11:34 PM (GMT 0)
Actually the only meds I have ever taken is Asacol...and during flares which were few and far between Entocort and flagyl. flagyl did nothing for me this time so its out...Entocort is out...Im going on a quick run of prednizone until the 6mp kicks in. Or untill this flare calms down...Then it will be just 6 mp and asacol...My Doc did mention that Asacol could probably be deceased to 1 pill 3 times a day at some point when I respond to the 6 mp.

He also mentioned that clinically all evidence shows that Asacol does absolutley nothing for Crohns disease! I was kind of floored. He said the only reason GI's keep using it is because their patients like myself say that they feel a difference when they are not taking it for any length of time...

But I can say that Asacol does do nothing for me when I am in a flare...but I figured it helped with maintnence during times of remmission...looks like a mind game though.

Posted 11/13/2007 11:44 PM (GMT 0)
Asacol is primarily for UC patients. It's designed to reduce inflammation of the inner lining of the colon and rectum. Crohn's patients do see some relief from it if they have inflammation similar to UC's (usually from a lot of D). My GI said it's not a "flare up" drug, but more of a remission drug- to reduce the risk of flare ups and to extend the time between flare ups. *shrugs* Not sure. It might be a Jedi mind trick after all. Heck, most of the CD drugs we have now are for RA! I'm still researching the ties between the two. Remicade was brought out for RA patients, and then they found that it helps with CD and UC. Same for Humira. I know it deals with the TNF blocking, but I still have more research to do.

Hopefully the 6MP works quickly for you! :-)

~Sway
Posted 11/14/2007 12:27 AM (GMT 0)
6mp and asacol did not help me in my flare ups in the early 90's. I had to take 20 to 40 mg of prednisone to help me from ending up in the hospital. The doc's said I need to get off the preds after being on them for 12+ years. Predinisone is bad for long term, when I started taking it in 1980 they didn't know the long term effects like loss of bone density and since I was taking it as a young teen it stunted my growth.
Posted 11/14/2007 2:21 AM (GMT 0)
good luck with 6mp and keep us posted how your progression is. i am curious cause i am sill waiting on blood work to start 6mp. gosh, it can be so frustrating having this disease and i am REALLY getting frustrated waiting to hear about my blood work. it's been 2 weeks :(

hope you are feeling better real soon!
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