please describe your pain

Mine feels like there are shards of glass in my RLQ and my intestines are bumping into them. This only happens occasionally now on pentasa I never had cramping I also get intermittent pain in my URQ and down the right side.

Well, I know for me personally the cramping is located mainly in the middle, below my belly button. The cramping comes on so sudden that I have to take slow, deep breaths until it passes, then I head to the bathroom because the cramps always lead to D. Sometimes there's vomiting too but that has slowed down a lot for me, but the D is always a constant. This happens every day, numerous times a day, always after I eat. And once in awhile as an added bonus my lower ileum becomes so inflamed that it gets almost completely blocked, causing terribly painful stomach pain and vomiting, this can last for a few days at a time. It sucks the life out of me and makes me so tired it's all I can do to get out of bed and go to work 5 days a week. If I am feeling up to it after work I do some tidying up, etc, but a lot of nights I'm so tired I watch TV and head to bed early, just to start all over again the next day. This disease has changed my entire life and nobody who doesn't suffer from it can possibly understand. It's frustrating and depressing.
Tell us about your experience.

mcleaver1969 said...
Well, I know for me personally the cramping is located mainly in the middle, below my belly button. The cramping comes on so sudden that I have to take slow, deep breaths until it passes, then I head to the bathroom because the cramps always lead to D. Sometimes there's vomiting too but that has slowed down a lot for me, but the D is always a constant. This happens every day, numerous times a day, always after I eat. And once in awhile as an added bonus my lower ileum becomes so inflamed that it gets almost completely blocked, causing terribly painful stomach pain and vomiting, this can last for a few days at a time. It sucks the life out of me and makes me so tired it's all I can do to get out of bed and go to work 5 days a week. If I am feeling up to it after work I do some tidying up, etc, but a lot of nights I'm so tired I watch TV and head to bed early, just to start all over again the next day. This disease has changed my entire life and nobody who doesn't suffer from it can possibly understand. It's frustrating and depressing.
Tell us about your experience.

hey mcleaver1969, when you do have the symptoms of a "blockage", when do you deceide its time to go to the hospital. I have had your symptoms before but whenever I start throwing up, I tend to panic and go to the hospital. For which then they admit me. I was told by my GI doc that you should wait at least 2 days before going to the hospital (if your symptoms haven't gotten better).

I have different kinds of pain in different places at different times. The weirdest though, is when I have this diffuse, prickly pain all through my intestines. It feels like I swallowed a cactus or round hairbrush. maybe the shards of glass description is the closest to what I feel. I have no clue what this is!

I have an almost constant achey pain in the left lower quadrant and sometimes I also feel it in on my right side. The worst effect for me is the aching joints and muscles all over my body and fatigue. I don't notice the pain during the day, but at night it gets really bad.

When I am going to have D I get very sharp crampy pains, and whe I am C I get a bloated naseus aching. (I go back and forth between C and D)

when I first was diagnosed in july/aug, my pain was located on my R lower quadrant. when I ate, I felt as though I was eating glass shards and felt it while it traveled through my intestines all the way to my R side where I felt like I was being stabbed repeatedly by a huge hunting knife like in the action/horror movies. It was very sharp whenever I would eat, so the only way I controlled it was to NOT eat or drink OR eat/drink as little as possible 1/2-1c max. Basically my side would throb in pain 24/7 but have the sharpest pain when I ate. I sometimes had to put my r hand on it and press when I would walk around. I don't think it did anything but it felt better. Also after I ate, I would get more bloated and gassy. note.... pain sharpness seemed to dull after I started visiting acupuncturist so I still felt it but it was more muted, bloating decreased after I started taking dietary enzymes with my food. The area affected felt warm to the touch.

lately, I explained my pain to someone as still being in my R lower quadrant, but now localized to a 5 in gash in my side with rubbing alcohol being dripped on it 24/7. (I measured the location so that's where I got 5 inches from) So it's more of a never ending burning, stinging, paper cut irritation pain. However, it DOES become more sharp when I eat. I can now eat food without it feeling like glass going down and have upped the amount to 1-1.5 c a sitting, BUT I still have to take dietary enzymes to counteract the bloating. I also still go to the acupuncturist every Wed and usually by Tues the pain level intensifies until I see him. I also just placed my hand on the affected area and it definately is still warmer than my l side in the same area. =0(

Since I experience more C than D, I don't experience the cramping right before projectile diarrhea. It feels more like a menstrual cramp where my appendix would be if I had one. I normally have the "I know that I have to go poo but can't no matter how hard I try to push achy belly moments."

my 'normal' pain is JUST LIKE strong menstral cramps.   I also get very bad throbbing anus pain on a bad D day.

I once had this radiating pain from what felt like my stomach up through my esophagus.   I vomited from the pain, but nothing really came out.   I didnt know if I was blocked or what.   It went away after a couple of hours.