crohns in the rectum?

If you have crohns in your rectum what symptoms might you be experiencing??/ More diarrhea?  Some constipation like symptoms?  I am having many rectal spasms... like the dry heaves of the butt.  you know..when you feel like you have to throw up and can't and  just have the heaves. well this is what I have down below.  I am NOT constipated but go alittle ALL day long, like 10 times.  Sometimes nithing comes out.. just have that feeling. HArd to leave the house.  Also.. soemtimes, I don't feel I have gone. NOT Pleasant!  Could this mean the CD has spread to my rectum?  Am using a cream( analpram) but am wondering if this is just adding to the sensations?   Prof

I dont have time to write much now but i will later...As i read your post i couldnt believe how much i could identify with the dry heaves of the rectum comment. Thats what i tell my doctor everytime. I have crohns (currently) of only the rectum too and have a long saga to share. I soooooooooo share your pain. You are not alone. More to come later.

I have the very same symptoms and its been going on a long time. You are right, its like dry heaves of the rectom. My dr gave me Bentanol ? and it helps me. He also gave me script for a new suppository for the razor blade feeling. I am starting it tonite, I cannot remember the name of it. Hugs, Susie

My Crohn's is only in the large intestine, but seems to be primarily located in the rectal region. This is why my colorectal surgeon says she'd remove the whole thing with a permanent ileostomy. My symtoms are similar as you say, Prof. I also have a perianal fistula. And, when things are bad, I have a constant pain/ache below the pelvic bone. I used to use the HydroCort enemas, but the last time I used one was when I hemorrhaged so I was always worried they were connected. The other theory was that one of my rectal ulcers went deep enough to hit the hemorrhoidal artery.

mine is mostly in my rectum. I ahve had a boat load of fistulas and setons. THe rectum area was also the reason I got rectal cancer. Please keep up with your tests. If my canacer comes back, I will lose my rectum :(

Hello lilgeniexol,

As I understand it, a fistula follows an abcess which forms when there is a tear in the rectum or an infected rectal gland. Hopefully you caught it in time and the drugs will work and get your body to stop damaging itself. If the drugs work well, you won't get an abcess or fistula -- and maybe, just maybe this will be all the CD problems you will ever have! Keep a positive attitude!! This is what my docs said to me when they put me on remicade (all I have is rectal CD). According to my colo-rectal surgeon, my ulcer was superficial -- but I still got an abcess and fistula. The ulceration healed after 3 remicade treatments. Have you had any other tests besides a CT scan?

I don't know if my problem is related to crohn's in my rectum but I been having stool with blood stain and sometimes mucus with bright blood mixed in it.  my GI doctor says I might have CD in my rectum area.  I been bleeding for almost 2 months now.

Hi, I supposedly have Ulcerative proctitis, but my rectal ulcer was fistulating.  I know what you mean about that spasm feeling, I get it often, I hate it!  My doctor told me it's called Tenesmus.  I have had this same rectal ulcer for at least four years. My G.I. thought it would be easy to "fix" with rectal meds at first.  The only thing that has worked is Remicade, which closed the fistula but the ulcer is still there.  The only thing I have found to help the outer rectal pain in Lidocaine Viscous 2%, it is weird to use cause it's a syrup, but it is the only thing that doesn't burn like mad and helps!  I would love to talk to all of you whom are going through the same things and share ideas/experiences/advice.  Sorry you all are going through it, I know how painful and hard it is!

 

This is taken from this website: http://www.nlm.nih.gov/medlineplus/ency/article/003131.htm

Definition   

Tenesmus is the constant feeling of the need to empty the bowel, accompanied by pain, cramping, and involuntary straining efforts.

Considerations   

Tenesmus is generally associated with inflammatory diseases of the bowel, which may be caused by an infection or by other conditions. Tenesmus is characterized by a sensation of needing to pass stool, accompanied by pain, cramping, and straining. Despite straining, little stool is passed.

Causes   

• Inflammatory bowel disease (IBD)
• Crohn's disease
• Ulcerative colitis
• Anorectal abscess
• Infectious colitis (infection of the colon)
• Colorectal cancer or tumors
• Radiation proctitis or colitis (inflammation of the colon or rectum from radiation)

Personally I like the cortifoam (steroid based foam enema) much better than suppositories, I find it goes up a little higher than suppositories do.

:)

My Gi has me using Analpram. I think it is also used for hemmroids but it is a steriod like ointment. Sometimes I think it irritates the area.
Either way... it is a pain in the A--!!!!!!

Can someone tell me what the "Makers Diet" is or where i can get the book on it?  Has anyone had any luck with it?

Proctitis is mainly inflammation in the rectom but of course there can be polyps and even fistulas involved with having CD.

:)