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What's the longest you've ever not going to the bathroom

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Crohn's Disease
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Posted 12/9/2007 10:57 AM (GMT 0)
2 days?

6 days (this is when i get worried)

10 days (what do you do in this situation?)

I know have any blockage - but sometimes the D is so bad I need to take Immodium. The Rx drugs such as bently will help stop the D once it arrives, but doesn't prevent it.

How do you get things "moving again"- normally :)

It's be 6 days for me, It's 6 am and apparently I had to go (after cramping, sweating and noises like an alien). I drank a glass of milk and the rest is history (a new no no). ALL I can say right now is THANK GOD for ambien. I just want to sleep.

 

Posted 12/9/2007 3:39 PM (GMT 0)
Six days is not that unusual for me. Patience, eating less, and drinking more water is my usual method.  I don't like taking laxatives either. Then about once every few weeks my system will decide to completely clean itself out. What a releif !!!

Good luck with whatever you try.  I know it's very uncomfortable.

Posted 12/9/2007 4:04 PM (GMT 0)
I have had many issues with C in the past from my stricture etc. I would go sometimes a couple weeks with no BM. I take stool softeners to help sometimes but be careful if you buy them since some of them also contain laxatives they are usueally the ones that are about $1 more than the others of the same quantity in the same brand. I also had been on Miralax prior to Sx this was before it was OTC, you can still get it by scrpit if your doc wantsyou on it but in your case I would avoid things that bind you ex rice, bananas, tea, applesauce, cheese

make sure to take in more fluids mainly water. I have also gone as far as having to use glycerine suppositories. I am one that cannot give myself an enema but suppositories are no problem for me.
Posted 12/9/2007 5:09 PM (GMT 0)
I take a stool softner every night to keep things moving. If I don't I am in pain if I even miss a day.
Posted 12/9/2007 6:36 PM (GMT 0)
This is why I take fibre supplements daily as my GI directed me to (for the rest of my life he suggested) because in the past I've had issues with both C and D, not anymore thank goodness, neither is pleasant as you all know.

:)
Posted 12/9/2007 6:57 PM (GMT 0)
Bout 4 weeks, happened after an emergency appendix operation, twisted bowel.......................Big trouble.
Posted 12/10/2007 2:10 AM (GMT 0)
Never had an obstruction, have suspected some stricture at times. Sometimes it's 4-5 days for me. Constipation is not as big a problem for me as the D, but, let's admit that 4-5 days worth can make you miserable. So.....I drink lots of water, stool softner Glucolax is my choice or daily fibre supplements if you can handle them (start out slow on the fibre). But the most helpful thing for me has been to WALK everyday or ride my stationary bike. Exercise keeps things moving along.
Posted 12/10/2007 2:22 AM (GMT 0)
The longest I've gone without going is probably 2 days and that is when I take an imodium. It's the strangest feeling after going 3-4 times a day for years.
Posted 12/10/2007 2:39 AM (GMT 0)
5, maybe 6 days on certain pain meds ( Coedeine, to be precise..). Since I cannot use that med any more, its only 2-3 days when on pain meds.
And as I just found out, when fighting the latest intestinal bug that is running rampant around here, those meds are useless against the big D..

Matthew
Posted 12/10/2007 3:05 AM (GMT 0)
I have this problem, my dr says C is very common after a flare, which is crazy since you spend so long (weeks, months) having constant D.  He has me take Metamucil, and I HAVE to drink over a gallon of water a day.  Even with that it isn't completely back to normal, I can tell it's mostly the fiber that I am taking (which TMI alert but completely discredits any claim colonic-proponents have regarding mucoid plaque and the need for colon cleansing, what they are talking about is the result of taking a lot of fiber)

Posted 12/10/2007 4:19 AM (GMT 0)
I am in horrible pain after skipping a day. since I am currently in the middle of a sitz marker (bowel transit) test, I can't take glycolax and am miserable. hopefully tomorrow the test will be done.
Posted 12/10/2007 10:29 AM (GMT 0)
The longest I haven't gone to the bathroom since I've been diagnosed was 6 days and I was sicker than a dog. MY PCP and GI said to go to ER if I found no relief between 6 & 7 days.

I am more C than have D. When I first got diagnosed I would not go and then have diarrhea and then go back to to not going. Since october when I started the imuran, I don't have D at all but now have to creatively find ways to have a bm because it is as if the switch is off and I don't feel the need to go. My belly aches and is telling me that there is something up there but no feeling of needing to push something out. =0(

I drink lots of fluids, take metamucil every day, eat oatmeal every day, was taking docusate (stool softener) but now have switched to miralax and take it every 2 days on top of everything else. (It is not a laxative even though it has the lax at the end) The miralax works but I need to keep playing with it so I can go more regularly.

I read your email again..... My coworker who has IBS had this SAME problem for the past month. She is going to see my GI in mid Jan but has been advised NO immodium until they figure out what is going on and now she has to go on a low residual diet. She said that she was having explosive diarreah and so she would take 3-4 immodiums to stop it since that was the only thing that worked for her and then would get so bound up that she would eat salad to get diarreah again because the pain from the C was so great! maybe you too could go on a low residual diet till your tum tum feels better. good luck
Posted 12/10/2007 1:39 PM (GMT 0)
Drinking more water will help you go to the bathroom I generally drink about 6-8 glasses a day (which is 4x500ml water bottles).
The longest i've gone was 5 days, and yes it feels weird cos I usually go to the bathroom when I wake up everyday and sometimes just before bed.
It's a relief but I get scared thinking an accident is gonna happen, but it doesn't.. lol

If you have a fever and have lots of pain i'd see a doctor, if it's really bad i'd go to ER.
Posted 12/10/2007 2:22 PM (GMT 0)
Gem! I think you are the winner. You should get some kind of prize. I bet that was really scary.
Posted 12/10/2007 3:50 PM (GMT 0)
7 to 11 days is not unusual for me.   I take a stool softener, drink glycolax every day and use suppositories, but even with all that, it can still be 7-11 days before anything happens.   

The biggest problem is when I do finally go, I'll spend a couple of days in the bathroom and I'm totally wiped out by it.   Not sure which is worse..!!

 

Posted 12/10/2007 8:45 PM (GMT 0)
Fitzy,
If I was being really honest, it haunts me to this day. I guess the prize for me was I got to tell the tale and survived it. I will never forget that pain, forget to 0 to 10, I crashed, one surgeon said why don't we go in, and the other one would say no we take it slowly. Actually the pictures I put up on the photobucket site that Gladbag started up, were taken at that time. TPN got me through, I recovered to a certain degree then started to deteriorate, that's when they went in and discovered Crohn's, several weeks later.
Tess
Posted 12/10/2007 8:52 PM (GMT 0)
I forgot to add when I finally went, they announced it on CNN live, yep they broke into Larry King live and announced it. LOL. I call the Nurse aid that called the code that day my little angel, I love her to bits, and we see each other often and email regularly. This year for Xmas I've got her a year's sponsorship of a little Donkey in the UK at one of the Donkey Sanctuary's. Sher's a real animal lover and has some coloured sheep, I only hope the card arrives from the UK in time.
Tess
Posted 12/10/2007 8:56 PM (GMT 0)

Mormor Vicky said...
The longest I've gone without going is probably 2 days and that is when I take an imodium. It's the strangest feeling after going 3-4 times a day for years.

That is what happened to me.  I was taking my vitimins and I took some immodium (because I was going out) and the next day realized I hadnt gone to the bathroom for 2 full days.  

It was sooooooo long!  It's times like that i'm glad I have soft stools. LOL

Posted 12/10/2007 9:20 PM (GMT 0)
gemini, they really announced you finally going on larry king live? WOW.

where is that photobucket area that glad bag put up? now you have me curious
Posted 12/10/2007 9:58 PM (GMT 0)
No,....................... Just kidding, but that's what I said to the surgeon when he'd heard the news, and he laughed.
Posted 12/10/2007 10:00 PM (GMT 0)
I forget the password,.............. .hang on here it is
Crohnsdisease 6mp 3asa

Haven't checked it in ages, heaps of us put pictures up awile ago.
tess
Posted 12/11/2007 3:53 AM (GMT 0)

what is the url?

aka www.......

I went to www.photobucket.com but it was asking for a user name and password.

Posted 12/11/2007 3:57 AM (GMT 0)

Clcaj said...
7 to 11 days is not unusual for me.   I take a stool softener, drink glycolax every day and use suppositories, but even with all that, it can still be 7-11 days before anything happens.   

The biggest problem is when I do finally go, I'll spend a couple of days in the bathroom and I'm totally wiped out by it.   Not sure which is worse..!!

 

This is my life story!

Posted 12/11/2007 3:57 AM (GMT 0)
Crohnsdisease 6mp3asa
Posted 12/11/2007 4:17 AM (GMT 0)
I've gone a whole 3 weeks without a BM and my doctor seems to think that's normal. I'm on a strict diet to try and keep things soft (so to speak), I take stool softeners and I a cortenema every night. So, to make long story short, I'll be going for a second opinion in January. I can't wait to get a fresh opinion.
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