Hi,
I just wonder: Crazy Harry, do you eat raw fruit in phase 1? Or do you have to wait eating it untill your intestines have calmed down?
I have considered The SCD diet earlier, and I have followed some of the advices from both Maker's diet and SCD diet. I make my own yoghurt, and I avoid eating too much sugar and milk products. I buy gluten free pasta. I make all the food at home, I use a lot of fish, poultry and vegetables. I bake my own gluten free bread. I don't buy processed food at all. Everything I make is fresh and raw products. And I mix fruits like ripe banana, oranges and kiwi in the blender and add apple juice (sugar free of course).
I use a lot of spinach, brocolli (tops), and other veggies with less fibers. Just to avoid a stop, because I may have another partial obstruction, and I want to avoid that. The last one I had was while tapering prednisone in the middle of september. (used to get those once or so every month).
From september I started using Low Dose Naltrexone. Within a week all my symptoms was gone. Goodbye to diarrhea, bloating, the pregnant look, pain from after dinner and all night while sleeping. Gas problems...gone..terrible cramps in my legs and feet..gone..It happened I could feel some pain if I had been eating food with some long fibers.
This kind of pain have now also disappeared.
The group "low_dose_naltrexone at yahoo.com suggested a mix with gluten free products, no diary products and no sugar AND low dose naltrexone. They claimed that this was a good solution, when I registered and asked for advice. Some of us Crohnies in there gets well really fast, as I, but some need more time, often some weeks to notice a different, and even some months to notice more differences.
I would anyway suggest, for those considering LDN: stay at a minimum dose of prednisone or entocort as a maintanance medication while starting with LDN. If the dose is around 5 mg for pred or 2 mg for entocort it's not a problem to use LDN, even asacol and LDN is ok to mix. The latter isn't even contraindicated at full dose.
But full doses of prednisone is contraindicated. Remicade or humira as well. All other immunemodulators or suppressors are not used with LDN. And you must never use pain killers containing narcotics with LDN!
LDN is taken in a low dose; only 4.5 mg per night (always taken by night between 9.00 pm and 2.00 am.
LDN must not be taken in a bigger dose than this. You can buy it yourself at a pharmacy, and mix it from 50 mg tablets without rx.
Please, be sure to know how to mix it down to 4.5 mg with sterile water. Ask the pharmacy how to do it correctly!. But it's sure much better to ask your doctor for an rx, if he / she is willing to write a note. Some are. My GI thinks LDN is interesting, he is satisfied to find what it has done to me.
It's an off label prescribtion, it's originally prescribed for another groups. But then again: 50 % of all medicine prescribtions is off label. Even humira is off label for Crohns disease. It's approved for another disease (reumatoid arthritis, i think), but many doctors prescribes it for Crohns.
LDN is a good help as is Makers or SCD diet or other diets. LDN costs 65 cents a day. It doesn't give you severe side effects. You'll have some sleep issues (tired for some weeks, or more energy than usual in the very early morning;-) Some get a headache for some mornings, some have funny dreams for a week. Then it's over. I got the headache for some days, I got the funny dreams, I was tired and needed a nap once a day. I was also tired earlier than usual in the nights.
But it's all gone.
The best solution is always telling your doctor for advice. But a lot of doctors have never heard of LDN, and a lot is sceptical. Some listens to what you tells them, and let you have the receipe.
There is a good site: www.gazorpa.com that tells you what to know before you make the doctor a visit.
Good luck in trying another alternative. You may get a better health. So consider it.
I am not a doctor. I don't try to act as one. I am just another Crohnie who has tried another medication.
I have the deepest respect for YOUR medicine choice and your values. I don't earn money by telling you this. I just want to share.
Dr. Jill Smith at Penn State Hospital / University / is now doing a phase 2 trial: IBD versus LDN. The result will be ready around this summer, I hope.
Ingrid