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Chronic Fatigue & Crohn's

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Posted 4/2/2008 2:32 AM (GMT 0)
my gosh, i stay so tired. Is it that way with ya'll? i could sleep all day. I saw a rheumatologist and was telling him all that was wrong. He said, the tiredness isnt something a nap will cure. It is way past that point, now. I just started a multivitamin the has some iron in it. How long does it take for that to kick in.? I make my appts. for the afternoon cuz I am too tired and sleepy to go in the  mornings.I do have sleep apnea and use a CPAP machine. I take a lot of meds. Would that be a part of the tiredness?

ya'll take care.Julie

Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more.

Posted 4/2/2008 2:42 AM (GMT 0)
Hi Pommom,

Unfortunatley, fatigue is a common problem with inflammatory diseases. Our bodies are very busy being inflammed and this takes energy. If only our bodies would just chill out!! I have read lots of post from folks who take vitamins, minerals, etc., which may help you out. I suggest you search previous posts. I just take a multi-vitamin and that helps give me more energy. Oh for the days when I don't feel like I have to force myself to move!!

Take care.
Posted 4/2/2008 11:38 AM (GMT 0)
Do you know if your iron levels are LOW? If so, you're going to need more than a multivitamin with Iron in it to get your levels up.

I've been exceptionally fatigued lately. Some days I feel OK. Other days the fatigue knocks me over to the point I can't concentrate on anything.

My iron levels are very low - I just recently found that out so that COULD explain my fatigue. My GI put me on prescription iron supplements, 2 per day for the next 6 months. That's to go along with my multivitamin.
Posted 4/2/2008 4:59 PM (GMT 0)
Oh my gosh, I am ALWAYS tired. Yesterday afternoon I was at my desk and my eyes were so heavy. I had to ask my boss if I could leave early for fear of falling asleep on my keyboard. Of course by the time I got kids picked up and made it home I needed to prepare dinner...so much for a nap, haha! But what stinks about it is that I know that a nap wouldn't have really helped anyway.

I've had my iron level checked and it is okay - but I also have a thyroid disease which can cause fatigue. I think it is from the CD though because there are other signs that I'm not absorbing the nutrients I need, my eyesite has deteriorated, my skin is terribly dry and cracked, and I'm losing weight. And like FallColors said, our immune system is busy attacking us...which I'm sure uses a lot of energy.

I hope the multi-vitamin helps you soon! Have you thought of Vitamin B injections? I just had my first one on Monday and it seemed to help boost my energy (and my outlook!)...at least for the day :)

Blessings! Melissa
Posted 4/2/2008 10:00 PM (GMT 0)
Hello, the family doctor did check iron and b12. my iron is low. so I started the multivitamin. but maybe I need an iron tablet too. I will ask him on Tues. I thought I understood the nurse to say multivitamin with iron. so, maybe I just misunderstood what to take. I will get clarification on Tues.

Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more.

Posted 4/3/2008 9:09 PM (GMT 0)
vitamins usually work for me within a couple of hours. Not today - because I'm flaring pretty bad. I'm going home now to tak a percocet and get under the covers.
Posted 4/4/2008 12:28 AM (GMT 0)
It may sound silly but exercise always boosts my energy level. Take it slow at the start, but you will start feeling great and have a lot more energy. I was always tired until I started sleeping at least 7 hours a night and exercising for 30 minutes on most days. Now I feel as good as I ever have. I always avoided exercise, but once I started I became addicted. Hope this helps.
Posted 4/4/2008 4:58 PM (GMT 0)
I'm another member of the constantly tired group. I was also diagnosed with sleep apnea, but couldn't get used to the CPAP machine, which I don't use anymore as a result. I think my lack of energy is due to a variety of things: the CD, my job/work hours, high overall stress level, lack of regular exercise (except for the running around I do at work), trouble sleeping/staying asleep. I always wake up feeling as though I haven't slept at all. When spring comes, I want to get into some form of exercise and maybe that will help. I take multivitamins and get a B12 injection, but I don't think either really helps very much.
Posted 4/4/2008 5:04 PM (GMT 0)
Weird thing with me. I feel completely worn out, but I never can sleep. Not during the day anyway. I feel body tired, but not sleepy
tired, if that makes sense.

I always look forward to having my B12 shots, thinking it might help, but sadly never does, but that's another story...
Posted 4/4/2008 10:58 PM (GMT 0)
Yep, I agree with Meengayjj. Exercise helps, even if you can only manage a little. And it's supposed to help with inflammation levels too.

I.
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