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What do you find most helpful on HW ?

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Crohn's Disease
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Posted 6/14/2008 10:53 PM (GMT 0)
Hi I like the fact others are so supportive and that there is a lot of variety. lol gail
Posted 6/14/2008 11:10 PM (GMT 0)
I like sharing experiences and advice with people that truly understand what we are going through. Even loved ones don't truly understand.
Posted 6/14/2008 11:25 PM (GMT 0)
I like the way we can have a laugh at this DD with people who actually find poop jokes funny and the support when doing it tough.
Joanne
Posted 6/14/2008 11:42 PM (GMT 0)
I like that if I have CD related questions I can ask and everyone here understands. I don't have any family or friends with
this disease so I often feel alone.
Posted 6/15/2008 2:23 AM (GMT 0)
I love having a place to share my embarassing moments and crohns stories.
Posted 6/15/2008 2:25 AM (GMT 0)
You guys listen!!! That for me is everything....
Posted 6/15/2008 3:50 AM (GMT 0)
All of the above... :)
Posted 6/15/2008 4:13 AM (GMT 0)
I like all of the above too and that there is an opportunity to see/hear all the different perspectives and individual choices of therapy and how each person learns coping skills differently. Sharing these experiences helps each of us grow and find our respective journeys through the maze.

Gail- It is also special to find friends like you too!
Posted 6/15/2008 10:41 AM (GMT 0)
All of the above and the collective experience the group brings. Centuries of experience. It's an excellent knowledge base. A place where people can come with IBD and not be embarrassed or afraid to ask questions and know that the answers they are going to get are the best, most honest answers they could possibly get because the people here don't have a hidden agenda, a profit motive, to tell you anything other than the honest truth of what's worked or not worked for them. In short it's all of you, the members of HW that make this such a helpful place. Thank you! Excellent idea for a thread topic gachrons.
Posted 6/15/2008 4:20 PM (GMT 0)
All the friends I have made on here. I have learned more here than I have from my doctors,
Posted 6/15/2008 4:47 PM (GMT 0)
Definitely the support, understanding, ability to "talk" freely without embarrassment... The fact that I don't feel so alone. In fact, on here I feel almost "normal!" (Whatever that is!) I'm very thankful for this group!
Posted 6/15/2008 4:56 PM (GMT 0)
I have learned SO MUCH since joining HW. The experience here is priceless! Before HW I only had my own experiences to go off of, now I know what is "normal" and what isn't. Plus, all the advice has helped me SO MUCH! Thanx guys, y'all ROCK!
Posted 6/15/2008 10:04 PM (GMT 0)
I like that there is always someone who has been there, done that! Its helps not to feel sooo alone
Posted 6/15/2008 10:41 PM (GMT 0)
I love the fact that we are all supportive, that when we disagree we do so respectfully and don't hold grudges, I like the fact that the moderators are here doing their job to ensure that this remains a positive happy family and peace is maintained, I like the fact we usually do a good job of respecting and supporting our moderators, I love the fact their is always someone who knows more than I do and will share their knowledge, and someone generally needs a bit of knowledge or advice that I can give. Mostly I love that you are all here.
Sj
Posted 6/16/2008 12:54 AM (GMT 0)
Not feeling alone.... also having people that know how it feels to have CD! That is priceless! Even my hubby has no clue how sick I can be...or how tired etc. I honestly would have had a much more difficult 1st year without being able to discuss this stuff! Karen
Posted 6/16/2008 2:54 AM (GMT 0)
I don't know what I would do without HW.... I would feel a real loss, like my arms or legs had been cut off. HW literally "holds me up " sometimes. I love this "family" even tho we have never met....the caring is genuine, the friendships real.
I love that people here understand ..... truly 'get it'.... Our family and friends do their best to support and understand but they really don't KNOW! "its the ...unless you've walked a mile in a man's shoes....thing !
Up until I found HW, I always felt that somehow, this was all in my head....the disease was real enough, but I always felt like I had brought this onto myself somehow ...for worrying too much, stressing too much, not eating right etc etc... and always felt like family didn't think it was all that bad...you know "pull yourself up, suck it up, it couldn't be that bad that you have to cancel an outing AGAIN!.
You've been my lifeline... HW is a GODSEND! and even when I'm not online, I think of everyone every single day!...but I end up being online regardless if I've had time during the day because I'm usually up at 3 a.m anyway and thank God you are here!
Love and prayers
Mary

and P.S. y'all make me laugh!!!
Posted 6/17/2008 12:00 AM (GMT 0)
Reading all your reples and kindness is great and loving the friendships as well, the tall ships just sailed out today in Halifax. Being here is like sailing off to sea not always calm waters but lots of poo. Gotta love it lol gail
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