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SydneyJo - a work question

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Crohn's Disease
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Posted 6/15/2008 11:42 PM (GMT 0)
What do you do when you're at work and need to run to the loo?

Saw a job ad, wondering if I should apply, but worried about the d. It's a shop job; there would be nobody to guard the door against burglars if I ran to the toilet.
Posted 6/15/2008 11:45 PM (GMT 0)
PS. I put your letter in an envelope but haven't posted it yet - too tired to do much at the moment.

It's 2C here right now!! And I need to go and wash my hair 'cos I have a gastro appt shortly. Thought I could put it off until it got warmer, but it's 40 mins later and still freezing :-(.
Posted 6/15/2008 11:52 PM (GMT 0)
Hi Ivy,
Im lucky to have someone cover for me if I urgently have to go - I dont know how I would go if I worked alone - maybe a 'back in 5 mins' sign might be able to be used. Dont be discouraged I would apply anyway, I know at my local shopping centre the security guard stands outside the shop for those shopkeepers who work alone and tells customers to come back soon.
Im excited for you - this must mean you are feeling a bit better.
Jo
Posted 6/16/2008 12:00 AM (GMT 0)
It's not so much that; it's because I'm worried about money. And lonely.

It wouldn't be in a shopping centre. It would be in the main street, so no security guard.

It's in a book shop - 10 hours / week and an interest in reading preferred.

How did you know you were ready to go back to work? Me, I'm not sure if I am yet, as I'm still so tired and am not really managing at home. It's been six years of being housebound, though - I'm lonely and frustrated.
Posted 6/16/2008 12:15 AM (GMT 0)
I cant really say what made me know why I was ready to go back. I think after my resection and being off for 8 months I started to go stir crazy being at home - I think thats why I chose to go back to Hospitality work - I could talk to people again! I am currently doing up to 18 hours a week and I do feel tired still but I will nap off when ever I get a chance - and that helps. I really need to keep moving so my AS doesnt start flaring again so this job is perfect for that. Also. the people I work with understand that I can be unwell - they have seen me deteriorate right before there eyes - so I do get to do 'lighter' duties on those occassions. It is frustrating when all you want is to be like a 'normal' person and go out to work, but dont rush things I guess you will know when the time is right. The job sounds great though - I would love to work in a book store as I am an avid reader too.Im sorry Im not much help.
Jo
PS good luck at gastro appt.
Posted 6/17/2008 1:00 AM (GMT 0)
... So was it easier to get back into the workforce because you'd had a job there before?

I had three appointments yesterday and am *wrecked* today. I don't seem to have much stamina to get beyond about 2.5 hours out of the house, so maybe it's too early to start thinking about a job yet. Work would involve a four hour shift at least, wouldn't it? (Tell me if I'm wrong; I've never done this sort of thing before).

Gastro said not to get impatient either - considering where I've come from, it's amazing that I'm even this good, so *shrug* maybe I should wait a while.

Thanks, Jo.

I.

PS. I *finally* posted your letter yesterday! It only took me 2 weeks :-/
Posted 6/17/2008 4:47 AM (GMT 0)
Yes, now that you have put it like that, it was easier to go back to work there - they knew I had left due to "illness" last time, so I guess some of the anxiety of the "unknown" had been removed.

I think three hours of work is the minimum required for a day here.

I agree with your Gastro, be patient. The last thing you need is to make yourself sicker by rushing into work - although I do understand your impatience - very frustrating!

Cant wait to receive my mail now!
Take care
Joanne
Posted 6/17/2008 5:21 AM (GMT 0)
v frustrating indeed. I keep thinking I'm being slack and lazy because I need to crash and keep quiet for hours each day, and have to keep reminding myself of how far I've come. I also have the scary feeling that this might be as good as I'm ever going to be, and *that* is a very frightening thought. I feel like I'm just taking up space on this planet and should be doing something productive. :-/


Thanks for letting me know about the three hours. And let me guess; that's the unusual minimum, right?

I think you'll find the letter is more of a moan than anything, but at least I wrote it!!!

:-)

How are you?

I.
Posted 6/17/2008 5:36 AM (GMT 0)
Im just about to leave for a three hour shift at work (sometimes I wonder if this is worth going in for due to petrol prices) so sorry if this is short,
I felt the same way as you are feeling for a very long time, some times still feel that way on bad days, I think its this DD no one likes to feel like thay are going to be sick forever - and in a nutshell thats what CD is. I know some people get it under control and live relatively normal lives but there are those who just cant - like yourself. Please dont beat yourself up over this = I know easier said than done.
Oh and to get me through this three hour shift I had an hour and a half nap after lunch!
Still cant wait for letter even though you think its all a big moan LOL
Take care
Joanne
Posted 6/17/2008 5:45 AM (GMT 0)
Ta, Jo. I think part of the problem is other people's expectations. I know a few people with RA, and I feel (and this may be a misperception) as if they're criticising me and thinking that if they can do what they do, I should too. The problem is that I (and you, I think) are severe CD, and I'm not convinced they're severe (or as severe) in their RA. But the unspoken comparisons and judgements are still there.

Apart from anything else, RA doesn't leave you tied to the toilet! The limitations are quite different in each disease.

Hope work goes well.

I.
Posted 6/17/2008 12:23 PM (GMT 0)
I worked nights in a service station most of the time I wouldn't eat anything the day of my shift nothing in nothing out I'd just eat when I got home
Posted 6/17/2008 2:35 PM (GMT 0)
IVY - I worked in a gift shop alone and had the same issue. We had a sign I would put on the door and lock saying "stepped out be back in 5." If I was just going number one I left the shop unlocked with a sign on the register that I was in the "backroom" and would be right back. I also had a bell on my door so I knew if someone came in while I was out back. If you are only going to work 10 hours per week I doubt you would be working alone. Shop work was good for me because it was not very busy and I had to stool to sit on when no one was there.
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