chronic abdominal and joint pain, plus fatigue

I have pretty much constant abdominal and joint pain, plus fatigue. I would say that I have never been completely out of a flare since dx, but I kind of take this as a state of life with this disease.

Given some recent posts I have to wonder is constant pain and fatigue abnormal?

Sorry to make you feel like you're the only one dealing with the pain. Honestly...I've been dealing with the joint pain for so long I don't even think to mention it anymore. You're definitely not alone...I hope you feel better soon. *hugs*

Navy I think you have to go back to one of the first principles of this diease, which is that it is very individual. I have a relatively mild case and have minimal pain, except in a flare, when cramping and spasms can double me over at times. Others seem to have a higher level of chronic inflammation which produces more frank pain, while others still have joint pain involvement which doubles the whammy. Since you habve been in fairly continuous flare for so long it is not surprising thhat you would have a pretty high level of inflammation and the pain that can bring. I have searched this forum and other sources for some time and I still have yet to encounter a "typical" Crohns patient, since there is none. However I have seen quite a few posts from patients who tell of pretty severe levels of pain on a fairly steady basis. So don't feel alone.

I'm still coming to terms with the pain and fatigue.  I have occasional abdominal discomfort, but most of my GI pain is at the rectum and anus.  I still have problems from the incisions from my hemmie/skin tag surgery, and I'm beginning to think I always will.  One day of d or even increased frequency can leave me with a lot of soreness, itchiness, and light bleeding.  Now that I'm off the pred, my joints are giving me a lot more problems, too.

I think my problem has been that none of these problems are all that bad.  Each one, individually, is something that I can tollerate and wouldn't have bothered checking out with a doctor in the past.  It's the overwhelming mass of them that's wearing me out.  Every move I make causes a small ache somewhere.  Every trip to the bathroom leaves me itchy and uncomfortable.  I wake up every morning not quite rested enough.  I feel like I'm being ground down by all these little things.  And yet, I feel like a whiner for allowing them to affect me.  It may not be pleasant, but I'm still physically capable of doing things, so what's my problem, you know?

Yep!! me too sweetie, and you expressed yourself perfectly. It's this DD that's abnormal...

Navy,
Somewhere in my head I recall you or someone else here had Remicade induced lupus. Was that you? If it was you, how do you know that lupus is no longer in the picture? I am going somewhere wuth this but will wait until I find out if it was you that had the DILE.
Ides

Hi Navy No I have not had any bowel pain since surgery body pain yes. Where is your CD at and have you had any resections. What meds are you on now? lol gail

I never had experienced fatigue like what I had prior to being diagnosed with Lupus. It felt like I was trying to move through neck deep snow all the time. Perhaps getting them to run blood tests to assess the lupus factor would be worthwhile. Make sure they do a C3 Complement test when they do the testing. My rheumy says that is one test that can indicate the level of inflammation one is having. My C3 is in the dumpster. No wonder I feel like a train wreck......

Fatigue yes, constant pain no. Keep working with your GI to get the pain resolved.