My example of light at the end of the tunnel just got sicker

HabsHockeyFan

Veteran Member

Joined : Jan 2006

Posts : 3240

Posted 9/8/2008 11:48 AM (GMT 0)

This disease really stinks! I am so angry right now, but not for me. My friend who lived with severe UC for many years finally had a colostomy and she looked stupendous. She got her life back. I was so happy for her and it gave me a lift of extra hope.

Now she is in the hospital with a new diagnosis of crohns in her terminal ileum/anus.

I just need to vent about how much I hate this darn disease for her. It's just not fair to get so far and be pushed backwards. I am hoping she will meet the criteria for one of the newer meds or the stem cell trial to get her back in shape quickly. I just don't know what they will do for her with no large intestine.

Cookie's Wife

Regular Member

Joined : Aug 2005

Posts : 299

Posted 9/8/2008 12:18 PM (GMT 0)

That always seems to happen with this disease. Just for a moment you thnigs start to feel better then WHAM... you have a setback. Give your friend a hug for me and tell her that she's in my prayers!

teddybearweiser

Veteran Member

Joined : Oct 2004

Posts : 3042

Posted 9/8/2008 2:20 PM (GMT 0)

My prayers are with you and your friend.
teddybear

belleenstein

Veteran Member

Joined : Feb 2007

Posts : 1010

Posted 9/8/2008 4:24 PM (GMT 0)

How horrible for your friend, especially since her surgery for colitis, may not have been appropriate for crohn's. These are the times that you really need strength to get through it. So tempting to look backward and say if only. But the only path is forward. Your friend has to come to terms with her new reality. Hard! Hard! Hard!

LMills

Veteran Member

Joined : Apr 2008

Posts : 1753

Posted 9/8/2008 6:20 PM (GMT 0)

That's terrible!! I don't understand why things happen the way that they do sometimes, but I have to think that it will be for good in the end. I hope they find a better way for your friend. Let her know a lot of us are thinking for her and wishing the best. You're a good person to be sticking by her through this. I know too many people(or should I say not know?) who completely disappeared from my life after this disease began to take over.

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