possible crohns, nothing showing up in tests,

Hi there, i am a 30 year old female, who has had ibs for quite some time, most recently in the last 6 months, i have had non stop diarrhea, and have lost about 35 pounds, every day i notice i lose more and more. I have had a colonoscopy, and a small bowel follow through, although nothing showed up, the doc still says that early stages of crohns can be hard to detect, therefor I will need to have another test in which they shove a tube down my throat under sedation. My symptoms are as follows, diarrhea, loss of weight, 35 pounds, abdominal and pelvic distention, hardly no appetite, becoming very full and distended even when eating a little, always feel nauseous, and am very very sore.

I was also diagnosed with fibromyalgia, having all 18 tender points as well as more degenerative disc disease than i should have at this age, in october of 2006,

I am not trying to diagnose myself, however, i am very sick, and need to know whats going on, i have a five year old girl and cant even look after her hardly, between the headaches, the fibromyalgia and the stomach and instestinal problems. I just would like some answers and some insights.

I do not see my doc again until october 13th, in which he will probably give me that other test where they stick the tube down your throat.

I really really hope that they can find out whats wrong with me, i dont know if im sore in my joints because of the fibromyalgia, or if im sore because of whats happening with my abdomen, ie, cramps, feeling sick, diarrhea, sometimes up to 20 times  a day, and its every day, not always 20 times a day, but there isnt a day goes by that i dont have it atleast once or twice.

regards, and thank you ,

I am also new to the forum, and not sure how to use this lol

kelly

Hello and welcome. I'm sorry for what you are going through. I too had a young child when I was first sick so I understand how frustrating it is to not be able to care for your child the way you want to. The important thing is to keep pushing for some sort of diagnosis and not give up and start to believe that it is all in your head. You know that something isn't right. It may not be CD, but it is something and you deserve to find an answer and some treatment. The tests we have to go through are not always the most pleasant, but the doctors are pretty good about giving proper medication so that they are tolerable.

As far as getting to your next appointment, I would suggest going to a very low residue diet or even an all liquid diet. You need to get nutrition into you, but you also need to give your bowel a rest. Try some soft foods, like mashed potato, rice, pasta, fish, baked chicken, soup, eggs, custard, puddings, or even some Boost or Ensures. If you can tolerate milk products drink milk shakes or yogurts. Basically when my guts are in an uproar I go against the whole FDA healthy eating thing and eat all the things they say are bad for us. The whiter and more processed the better for me, ie, Apple, bad, Apple sauce, a little better, Apple cider, a little better still, Apple juice, the best choice. Try to eat a little bit every few hours and don't over load your tummy with big meals. Even if it is just a few bites of a cracker. Good luck and please keep us posted.

Welcome Kelly!

I second Nanners on the pill cam.  My second GI suspected Crohn's based on my Colonoscopy but the pill cam is what confirmed it and gave me the "solid" diagnosis.

My small bowel follow through didn't show anything, either.

I have also had the upper endoscopy done (when they did my Colonoscopy, they did that as well) and they sedated me, so if they DO end up doing that test on you, it really isn't bad, just to let you know. 

I sure hope you feel better soon!  I am also a parent, I have a 9 year old, and it is so frustrating when you don't feel well and want to spend time with them. 

Take care and please keep us posted!

Hi guys, and thanks for the welcome, i would just like to say that i have been eating normally since yesterday, i had my small bowel follow through around 9, and i was finished at about 10:15, giver take a few, I have not been able to have a bm since then, is this normal? i believe that im starting to become constipated, as i am quite distended from eating and not evacuating, Hope that im doing this right, thanks again,

kelly