I've been on remicade since last March and was doing really well until a month ago when I had my last infusion. After all my previous infusions I always felt really really good in terms of stomach stuff. While my last infusion helped some, it didn't make me feel great. This is also the first time that I've experienced joint pain the next day. I laid in bed for a few days afterwords with really awful joint pain and stiffness that went down to a mild pain and only in a few joints so I never really worried about
it. Last week though I started having the really bad pain and some stiffness again so I called my GI and she thinks I may be having a "lupus like reaction" so I had blood work done yesterday to test for remicade antibodies.
I guess I was just wandering if any of you had had this sort of reaction and what happened? When did you start feeling better? Its been coming and going to various degrees of severity over the last week and a half but it never totally goes away. I'm getting really sick of feeling so awful. I'm in college and next week is the last week for the quarter so I'm coming up on finals and am totally stressed anyway without having to deal with this joint issue. I have a million things I need to be doing but can barely move to get them done. All I would like to do is sleep. Any help? I've never really had joint pain with my crohn's before and am not sure what to do to make it better? I've been taking tylenol arthritis but it only helps to take the edge off.
