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How much pain are we talking about?

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Crohn's Disease
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Posted 3/20/2009 10:05 PM (GMT 0)
I made a post here a long time ago trying to get some info on crohns. I started having digestive problems 7 months ago while taking a drug called lamisil. It was only 10 day supply of medicine and i started feeling MAJORLY constipated on the 6th or 7th day on the drug, and then that turned to D after a week and a half to 2 weeks. What bothered me is the gastro said it was probably IBS caused from the medicine with a low chance its crohns or colitis. So heres my question.....

All i usually feel is some gas, i get alot of D and im on a diet so that my stomach doesnt get aggrivated. Citricel (medimusal) and pro-biotics seem to get it under control to where i feel alot better then when im not on it. Plus immodium helps alot. I was told by someone with crohns, that if i had the disease, none of the treatments that ive done would be helping it. Not untill i got on medication designed to control crohns.

Also in reading these forums people tend to mention having pain. What kind of pain are we talking about? Like the pain you get when you're about to have D, or like a stabbing pain? Cause i don't have any stabbing pain anywhere.

I dont mean to bother you all with this, im probably just overreacting because it seems like one hell of a coincidence to get hit with crohns at the same time im taking a medication that has D and stomach problems listed as a side effect. just trying to get some more info on crohns. Also, if you had crohns...would you be feeling bad enough to check into the hospital?
Posted 3/20/2009 10:14 PM (GMT 0)
Imodium used to help me a lot before I got diagnosed. To me, the pain is bad, but not bad enough to have me in tears or anything like that. It's extremely uncomfortable, basically. Bad enough that I don't feel like moving, and I will sit there holding my stomach. I also tend to throw up a lot, get chills, I've lost a lot of weight, etc.

Have you lost any weight? If you have, it's usually a pretty clear indicator that it's more than IBS. How often do you have D? At my worst point, I was going at least every hour, sometimes more.

My pain was never a stabbing type pain. I have pains in 2 areas, my lower right part, where it feels like bad pressure or something basically, then around my belly button, where I get this weird pain that feels closer to burning than anything, but I describe it as an intense butterfly-like feeling, but intensified by 100 (this is the most annoying one to me). I've never heard anyone else describe their pain the way I do though, so I must have a weird way of explaining it, haha.

I've also never checked into a hospital. People have asked me to go at times, but I think I would only go if I noticed significant amounts of blood in my vomit/stool that wasn't stopping, or if I had an obstruction and the pain was severe enough that I was in tears.
Posted 3/20/2009 10:23 PM (GMT 0)
Ryoten,

I'm so sorry to hear that you are having issues. I think I can speak for everyone when I say...we don't wish this on anyone. I have had Crohns disease for about 30 years and have experienced my fair share of pain. To me the pain has been almost "clawing" in feeling. I would describe it as that scene in Aliens when that monster pops out of that guys stomach. Or as if Freddy Krueger was trying to claw his way out of me. But pain is different for different people.

Crohn's Disease is a cronic disease that can effect any part of your digestive tract. Irregular bowel habits are common with CD but also with many other diseases. It is good that you are doing the probiotic thing. That seems to help a lot of people. One important thing to remember with CD is that, in many people, stress can aggrevate the disease. Try not to worry. (I know... easier said than done).

As for you hospital question. I have checked myself in. But again different people deal with pain differently. I personally have been told that I have a pretty high pain tolerance. If you feel like you can't deal with it anymore, by all means go to the hospital.  Good luck and I hope you feel better soon.
Posted 3/20/2009 10:59 PM (GMT 0)
I dont feel like i have to go to the hospital. And yes i have lost weight (about 25 pounds) but again, i have been eating...very...very plain. No going out to eat, no fast food. Right now my D is under control and i havent taken any immodium.

I have been to the doctor and they did blood tests and stool cultures and they found nothing wrong. Again, im leaning more towards the medicine at this point as the culprit.
Posted 3/21/2009 5:10 AM (GMT 0)
Wow, I really like the description of "clawing" like the scene in Aliens - I describe it to my girlfriend (now fiancee) as a twisted up turkey claw grinding against my sides but it's definitely a "claw" feeling.

As for the intensity of pain/symptoms, I agree that you would probably realize if it is more than IBS (not that IBS is fun in any way). I have not yet checked into a hospital, though I should have on several occasions.
Posted 3/21/2009 10:57 AM (GMT 0)
When I have a blockage The pain starts in my lower right abdomen. It starts out with just a tiny little ache.( I know its a blockage) The pain gradually gets stronger and stronger as the hours pass but slowly. It takes at least 3-5 hours to get to a 8 or 10 but by then I'm at the hospital and already on pain meds. As the hours pass then comes the vomiting and even the anti vomit meds don't work but I'm so drugged up and drooling I can hardly remember. My pain starts as a dull ache and progresses into a constant pain like someone grabbing your intestines and squeezing them.

I hope this helps, I'm sure other people have similar pain or completely different.
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