To give you a bit of hope here, I used to have the "I feel more tired than when I went to sleep" feeling most mornings when I woke up. On the mornings I didn't have it, it was inevitably the last hour of sleep that mattered most - I could have interruptions all the time when I first went to bed, but it was as I was coming out of deep sleep that all the good was done.
Fast forward a few years (
okay, a decade if not two) and I no longer have the same constant "drop down now" bouts of fatigue, and it is rare for me not to wake feeling properly refreshed. What I did in the intervening years, other than finding the diet that worked for me (
it took me long enough) was learn that dealing with the disease comes first. If I am not well rested, I am arrested ! (
Metaphorically speaking.)Everything in my life revolves around never ever getting too tired, but also gradually building up the duration and intensity of exercise I take each day.
Can't call it a cure, and the fatigue still limits my life awfully - I don't work, hardly socialise - but I feel way better than I used to, and I get enough done that I'm now thinking about
part-time work again. Given all the info flaoating about
nowadays, I'd guess that anyone who has a close supportive family and enough money to sort out the diet thing has a far better prognosis than I had.
Guilt ? All that's not my fault, it's the 15 nanometre long boss lurking in my macrophages. And who wouldn't blame their boss ?
